2025 marks a powerful milestone at AGE-u-cate Training Institute: 10 years of Dementia Live® transforming the way communities, professionals, and families understand and support people living with dementia.
Dementia isn’t a far-off concern for tomorrow’s healthcare professionals. It’s an urgent reality. One that demands not just knowledge—but empathy.
How Employers Can Lead in Supporting Family Caregivers — and Where AGE-u-cate Fits In
At the Penn State College of Nursing, empathy is being taught through experience.
At AGE-u-cate Training Institute, we believe dementia care extends far beyond healthcare facilities and into the heart of our neighborhoods. While dementia is often perceived as a personal or familial challenge, the reality is that it touches every layer of our society. Creating dementia-friendly communities is not simply a noble ideal — it’s a growing necessity that directly impacts the quality of life for millions.
Caring for people living with dementia is not just challenging—it’s profoundly personal, deeply emotional, and often exhausting. Healthcare providers regularly find themselves navigating a complex emotional landscape filled with stress, grief, and sometimes, feelings of helplessness. This can quickly lead to compassion fatigue, a state of emotional and physical exhaustion that affects both professional and family caregivers alike.
Recent developments have stirred anxiety across the medical research community, as the National Institutes of Health (NIH) has paused the review and funding of thousands of research grant applications. With around $1.5 billion in research funding on hold—impacting studies on diseases from heart conditions to Alzheimer’s—this disruption has left many questioning what the future holds for biomedical advancements in the U.S.
Dementia is one of the most pressing global health challenges of our time, yet misconceptions and stigma remain major barriers to quality care. The World Alzheimer Report 2024 sheds light on shifting attitudes, persistent misunderstandings, and the urgent need for education in healthcare and communities.
Dementia care is more than just providing physical support—it's about fostering deep human connections through empathy. As the number of people living with dementia rises, care providers must go beyond traditional training and embrace an empathy-driven approach that improves well-being for both caregivers and those they support.
Over the past decade, AGE-u-cate Training Institute has been at the forefront of transforming dementia care through its flagship program, Dementia Live®. This immersive training experience has helped countless caregivers, families, and professionals develop a deeper understanding of the challenges faced by those living with dementia. To mark the 10th anniversary of Dementia Live, AGE-u-cate is thrilled to announce a new initiative: the Dementia Live® Scholarship Program for Dementia-Friendly Initiatives.
Dementia is not just a medical condition; it’s a life-altering journey that affects individuals, families, and entire communities. For caregivers and professionals, the need for a deeper understanding and practical tools to support people living with dementia has never been more critical. At AGE-u-cate Training Institute, we’ve spent over a decade refining our approach to dementia care training, ensuring it meets the emotional and practical needs of those who rely on it most.
This year, AGE-u-cate™ Training Institute is proud to celebrate two major milestones: 13 years of empowering caregivers and communities, and 10 transformative years of our flagship program, Dementia Live®. These milestones reflect not only a commitment to excellence but also the profound impact we’ve had on dementia education and care across the globe.
As the prevalence of Alzheimer’s disease and other forms of dementia continues to rise, communities across the United States are facing a critical issue: a shortage of neurologists and geriatricians, often referred to as neurology deserts. These areas, typically rural or underserved, lack access to specialized care that is essential for the early diagnosis, treatment, and management of neurological conditions. For individuals living with dementia and their care partners, the implications are profound.
As our population ages, the demand for caregiving surges, placing millions of family members in caregiving roles that often come with significant personal sacrifice. To build healthier, more inclusive communities, it is crucial to address the needs of family caregivers—particularly those who care for people living with dementia. In doing so, communities can ensure that both aging individuals and their caregivers thrive.
In the U.S., the burden of unpaid caregiving for people living with dementia continues to escalate at a staggering rate. Unpaid caregivers, usually family members, shoulder the immense responsibilities of physical care, emotional support, and often financial contributions. The impacts on these individuals’ lives are deep, affecting their health, employment, and financial stability. As we look ahead, it is imperative that we, as leaders in aging services, recognize this crisis and engage in developing supportive, sustainable solutions. Here, I want to share some staggering statistics on the current state of dementia caregiving in the U.S., explore the toll it takes on families, and discuss the work AGE-u-cate® Training Institute is doing to address these challenges.
Dementia caregiving in the U.S. impacts more than just the individual diagnosed; it affects entire families and communities. According to the Alzheimer’s Association, nearly 12 million people are expected to be diagnosed with dementia by 2050, leading to a commensurate rise in caregivers. These unpaid caregivers, who are mostly family members, contributed over 18.5 billion hours of care in 2023. At an estimated average wage equivalent of $16.59 per hour, this unpaid labor adds up to $339.5 billion annually. This figure is daunting, but even it doesn’t fully encompass the true costs.
Beyond the financial implications, caregiving is emotionally and physically taxing. Studies show that over 40% of caregivers for individuals with dementia report high levels of emotional stress. Caregivers often face challenges managing behavioral symptoms, ensuring safety, and making daily care decisions, all of which can be exhausting. Due to this overwhelming strain, dementia caregivers are at greater risk for physical health issues and higher levels of depression, with many reporting feeling isolated or unsupported.
For those who take on the role of unpaid caregiving, the commitment frequently comes at a high personal cost. Many caregivers reduce their work hours or leave their jobs entirely to accommodate the demands of caregiving, which directly impacts their long-term financial security. For example, one in five caregivers reported reducing work hours or quitting work, often sacrificing income and retirement savings to care for their loved one.
The costs extend to workplace productivity as well, with businesses bearing the weight of lost productivity, absenteeism, and turnover resulting from employees balancing work with unpaid caregiving responsibilities. This economic drain underscores the urgent need for businesses to support employees who are caregivers, with policies that allow flexibility and resources that make balancing responsibilities feasible.
At AGE-u-cate Training Institute, we are committed to addressing the complexities of dementia caregiving through innovative, research-based programs that prioritize early intervention, awareness, and caregiver support. Our Dementia Live® sensitivity awareness training is one powerful tool we use to foster empathy, build trust, and deepen understanding of dementia. This program immerses caregivers in a simulated experience of what it feels like to live with dementia, cultivating greater sensitivity and improving their ability to connect meaningfully with those they care for.
Understanding that caregivers need education to perform their role well, we’ve developed comprehensive training designed to equip caregivers with knowledge and practical skills. This empowers caregivers to feel more confident and reduces the strain of feeling “in the dark” when facing dementia-related challenges. We are furthering our public and private partnerships to build broader access to vital caregiving resources and serving as a key solution to early caregiver intervention. With a reach of over 2.5 million professionals, families and community members who have taken our training to date, we focus on program partner support and sustainability, a key factor in driving successful outcomes and positive change in population health, and cost savings.
The cost of unpaid dementia caregiving in the U.S. is a significant burden that continues to grow. As we develop solutions, it’s crucial for industry leaders, employers, policymakers, and community organizations to address the issues caregivers face, offering them not just recognition but real support. We’re supportive of increased funding for dementia research, expanded respite services, and policies that protect caregivers’ jobs and finances.
AGE-u-cate’s work is just a piece of the solution. By continuing to innovate and provide robust training, education, and support for caregivers, we aim to ease the burden of caregiving for millions and help bring about a future where no caregiver has to walk this journey alone. Now is the time for us all to come together, to lead, and to make lasting change that values and supports the tireless dedication of caregivers.
For more information on AGE-u-cate's implementation initiatives, please contact us.
As the population ages and the prevalence of dementia continues to rise, health plans face increasing pressure to provide high-quality care while managing costs. One effective strategy that has emerged is investing in caregiver education programs. By equipping caregivers with the knowledge and skills they need to support individuals living with dementia, health plans can achieve significant cost savings and improve health outcomes.
Research consistently shows that caregiver education can lead to substantial reductions in healthcare costs. A study published in JAMA Internal Medicine found that dementia caregiver education programs reduced hospitalizations by 36% compared to those who did not receive such training. This reduction translates directly to cost savings, as hospital stays represent one of the most significant expenses in healthcare.
Moreover, studies indicate that caregivers who receive education are less likely to resort to emergency room visits. The Alzheimer’s Association highlights that trained caregivers can manage dementia-related challenges more effectively, leading to better health outcomes and decreased emergency interventions.
Caregiver education also addresses the issue of caregiver stress. A meta-analysis in Aging & Mental Health revealed that such programs significantly lower stress levels among caregivers. Reducing caregiver stress not only improves their health but also minimizes the risk of caregivers requiring their own medical care, further driving down overall healthcare costs.
Investing in caregiver education fosters enhanced care for individuals with dementia. The American Journal of Managed Care reports that training programs result in better patient health outcomes, such as reduced behavioral issues and improved quality of life. Improved outcomes can lower costs associated with managing complications and recurrent healthcare services.
Additionally, education can help delay or prevent the need for institutional care. A study published in Health Affairs estimated that every additional month caregivers successfully manage care at home can save health plans up to $1,000 per patient by preventing nursing home admissions.
Several health plans have recognized the value of caregiver education and have implemented programs to support caregivers:
CareFirst BlueCross BlueShield launched "Caring for the Caregiver," providing educational resources and support. Early evaluations showed reduced caregiver stress and improved health outcomes.
UnitedHealthcare introduced the "Family Caregiver Support Program," empowering caregivers with strategies and resources, leading to decreased hospital admissions and improved care quality.
Kaiser Permanente developed the "Caregiver Support Program," focusing on practical skills and emotional support. This initiative has resulted in better health outcomes for patients and reduced emergency room visits.
Humana offers a "Caring for the Caregiver" initiative, which includes education and access to telehealth services, improving caregiver knowledge and decreasing burnout.
Blue Cross Blue Shield of Massachusetts has implemented "Support for Caregivers," providing training that reduces caregiver stress and increases the use of supportive services.
Aetna's "Caregiver Support Program" provides personalized resources, leading to better management of dementia-related challenges and reduced hospitalizations.
Molina Healthcare launched the "Caregiver Education Program," resulting in increased caregiver confidence and better management of dementia symptoms.
These examples illustrate how investing in caregiver education can lead to improved care quality, enhanced caregiver well-being, and significant cost savings for health plans.
As the landscape of healthcare continues to evolve, health plans must prioritize caregiver education as a strategic imperative. By investing in these programs, health plans can create a more sustainable healthcare system that benefits caregivers, patients, and the organization itself.
In conclusion, empowering caregivers through education is not just a moral obligation; it is a financially sound strategy that can reduce costs and improve health outcomes for individuals living with dementia. Health plans that recognize and act on this opportunity will position themselves as leaders in the evolving healthcare landscape, fostering a more effective and compassionate approach to care.
AGE-u-cate Training Institute is committed to partnerships across the healthcare and aging services landscape with proven and highly effective dementia caregiver training solutions for families, staff and communities.
Certified Nursing Assistants (CNAs) are on the front lines of caregiving, especially in dementia care. Yet, traditional training methods often fail to fully prepare them for the complexities they face. As dementia progresses, verbal communication becomes limited, stress reactions can become challenging, and emotional needs become more profound. This is where experiential education, particularly Kolb’s Experiential Learning Cycle, combined with innovative programs like Dementia Live®, can revolutionize how we train CNAs, equipping them with not just knowledge but empathy, understanding, and practical skills.
David Kolb’s Experiential Learning Cycle is a powerful model for adult learning, emphasizing a hands-on approach that is ideal for caregiving training. The cycle consists of four stages:
For CNAs, this cycle allows them to transform practical experiences into learning opportunities. When they are directly engaged in situations that mirror real-life dementia caregiving, their learning is deeper and more meaningful than merely absorbing information in a classroom.
Dementia Live® is an immersive training experience designed to simulate what it’s like to live with dementia. Participants wear specialized gear that impairs their senses—blurring their vision, distorting sound, and limiting dexterity. This simulation allows CNAs to step into the shoes of those they care for, creating a “Concrete Experience,” the first stage of Kolb’s cycle.
By experiencing firsthand the frustration, confusion, and disorientation dementia patients face, CNAs develop empathy that can’t be taught through lectures alone. This profound emotional connection is a crucial step in helping caregivers improve their approach to dementia care, particularly in high-stress moments when patience and understanding are key.
Once the Dementia Live® simulation concludes, CNAs have the opportunity to engage in “Reflective Observation,” the second stage in Kolb’s cycle. They discuss their experiences, share how they felt during the simulation, and reflect on how it relates to the daily struggles of those with dementia.
Through this reflection, they begin to “Abstract Conceptualization,” the third phase, where they develop new ideas and strategies for caregiving. For instance, understanding why a patient may react negatively to certain stimuli, or why it’s important to speak slowly and maintain a calm tone. These insights enable CNAs to provide more compassionate, patient-centered care.
The final stage of Kolb’s cycle, “Active Experimentation,” allows CNAs to apply what they’ve learned in real-world scenarios. After completing the Dementia Live® experience, CNAs return to their work equipped with new tools and insights. They can now experiment with new communication techniques, approach behavioral challenges with empathy, and better understand the non-verbal cues that are so important in dementia care.
The integration of Kolb’s Experiential Learning Cycle with innovative programs like Dementia Live® creates a rich, immersive learning environment that enhances CNA training. By not just telling caregivers what dementia is like but allowing them to feel it themselves, these programs build deeper empathy and improve problem-solving abilities. In turn, this leads to more effective care, reduced burnout, and a higher quality of life for both CNAs and those living with dementia.
As the aging population continues to grow and the demand for dementia care increases, investing in experiential education is critical. Through immersive experiences and reflective learning, we can better prepare CNAs to meet the challenges of dementia care head-on, with compassion and competence.
Recognizing these signs early can lead to better care and support.
When we think of dementia, most people immediately associate it with memory loss. However, dementia symptoms often manifest in other surprising ways long before forgetfulness sets in. Recognizing these early signs is crucial, as early intervention can significantly improve quality of life for both individuals and their caregivers. At AGE-u-cate Training Institute, we provide caregivers and healthcare professionals with essential tools to detect and manage the early stages of dementia. Here are five early signs to watch for:
Financial mismanagement is often one of the first cognitive areas affected by dementia. Individuals may forget to pay bills, lose track of spending, or make impulsive purchases that are out of character. Unfortunately, this can also make them more vulnerable to scams or fraud.
Key Insight:
In cases of frontotemporal dementia, impaired judgment is an early symptom, often leading to poor financial decisions. The complex nature of managing money—balancing expenses, savings, and budgeting—requires the coordination of several brain regions. As cognitive decline sets in, this task can become overwhelming.
Related Research:
A 2020 study published in JAMA Internal Medicine revealed that financial difficulties may begin up to six years before a formal dementia diagnosis. By recognizing these issues early, caregivers and family members can step in to provide support.
At AGE-u-cate, our Dementia Live® training helps caregivers become more attuned to early behavioral changes, including financial issues, to provide better care.
While aging naturally affects sleep patterns, drastic changes may signal early dementia. For example, some individuals with dementia may begin waking up unusually early or have trouble staying awake during the day. Others may act out their dreams—sometimes violently—a condition linked to REM sleep behavior disorder, which is common in dementia with Lewy bodies and Parkinson’s disease.
Key Insight:
REM sleep behavior disorder occurs when muscles fail to remain paralyzed during sleep, leading to vivid and sometimes harmful actions. Changes in sleep patterns are not only distressing for the individual but also impact the caregiver’s ability to maintain a normal routine.
Related Research:
A 2021 study in Nature Communications found that individuals who slept fewer than six hours per night in their 50s and 60s were more likely to develop dementia. These findings suggest that sleep disturbances can be an early warning sign long before cognitive symptoms emerge.
Through our Compassionate Touch® program, AGE-u-cate equips caregivers with techniques to help manage sleep disturbances and calm individuals experiencing anxiety or restlessness.
Personality changes can be one of the earliest signs of cognitive decline, and these shifts often go unnoticed because they may be subtle at first. Someone who was once outgoing may become withdrawn, or a normally easygoing person might exhibit irritability or distrust. These shifts are often more visible in everyday interactions than memory loss and may be tied to specific types of dementia, such as frontotemporal dementia.
Key Insight:
Personality shifts can stem from structural changes in the brain’s frontal lobe, affecting behavior, decision-making, and social interactions. Individuals may become less empathetic or even lose interest in activities they once enjoyed.
Related Research:
A 2019 study published in Psychological Science highlighted that personality changes, such as increased introversion or irritability, could appear years before a dementia diagnosis. Recognizing these behavioral shifts early can alert caregivers to seek medical advice.
AGE-u-cate’s programs, including Dementia Live®, help caregivers understand and empathize with the behavioral changes that occur in dementia, allowing them to provide more compassionate care.
Driving is one of the most cognitively demanding tasks that people perform daily, requiring quick thinking, decision-making, and motor coordination. Dementia can affect driving ability early on, leading to increased accidents, running red lights, or other driving errors. If an individual starts avoiding driving at night or in challenging conditions, this might be a sign that cognitive issues are emerging.
Key Insight:
Driving requires coordination between multiple cognitive functions, including visual-spatial processing, attention, and motor skills. Dementia can impair one or more of these areas, increasing the risk of accidents.
Related Research:
A 2021 study in Neurology found that changes in driving behavior, such as reduced driving frequency or increased accidents, could be an early indicator of cognitive decline.
AGE-u-cate’s caregiver training emphasizes the importance of recognizing these signs and initiating conversations about driving safety with compassion.
Loss of smell, while often overlooked, can be one of the earliest indicators of Alzheimer’s disease and other forms of dementia, such as dementia with Lewy bodies. The areas of the brain responsible for processing smells are some of the first to be affected by neurodegeneration, often years before other symptoms appear.
Key Insight:
Unlike hearing or vision loss, which may occur with age, loss of smell is often directly linked to the early stages of neurodegeneration in the brain. Many individuals with dementia struggle to identify or detect smells long before cognitive decline is obvious.
Related Research:
A 2017 study published in The Lancet Neurology found that a diminished sense of smell is one of the earliest manifestations of cognitive impairment. This research highlights how smell tests could potentially be used as a screening tool for early dementia diagnosis.
AGE-u-cate’s Dementia Live® program incorporates sensory loss simulations, helping caregivers experience firsthand the challenges their loved ones face.
Early Detection Matters: Get Trained by AGE-u-cate®
Recognizing the early signs of dementia is critical for getting the right care at the right time. From financial problems to sleep disturbances, personality changes, driving difficulties, and loss of smell, these early indicators offer important clues. At AGE-u-cate Training Institute, our programs like Dementia Live® and Compassionate Touch® equip caregivers with the knowledge and tools to detect and manage dementia’s early stages. By focusing on early intervention, caregivers can improve the quality of life for those living with dementia and their families.
Visit AGE-u-cate.com to learn more about our dementia awareness and training programs.
Dementia affects millions worldwide, and with the aging population rising, caregiver support is more crucial than ever. One of the most impactful strategies to improve the quality of life for both individuals living with dementia and their caregivers is early intervention . Research consistently shows that engaging caregivers early in the caregiving journey can significantly improve health outcomes, reduce stress, and save healthcare costs. Here’s why early intervention is so important:
Caring for a loved one with dementia is emotionally and physically exhausting. Without support, caregivers can quickly experience burnout, leading to health issues like anxiety, depression, and chronic illness.
Dementia caregiving often requires specialized skills, especially as the disease progresses. Many caregivers feel unprepared for the challenges they face, leading to frustration and feelings of helplessness.
This is where the Dementia Live® program by AGE-u-cate® Training Institute plays a pivotal role. Dementia Live is an immersive, experiential training that allows caregivers to step into the world of someone living with dementia. This simulation helps caregivers experience the confusion, frustration, and sensory overload often experienced by those with dementia, which builds deep empathy and understanding. By learning through experience, caregivers can develop the skills and confidence to handle difficult behaviors and respond to their loved one’s needs more compassionately. The integrated Empowerment Session encourages meaningful engagement, trust building, dissemination of local, state and national resources, and critical skill-building tools among other benefits.
Early caregiver intervention doesn’t just benefit the caregiver; it also improves outcomes for the person living with dementia.
Dementia Live helps caregivers better understand why certain behaviors happen and teaches effective, empathetic responses that can prevent unnecessary escalation of stress or behavioral issues, ultimately promoting a more positive care environment and improving the quality of life for the person living with dementia.
Early intervention for dementia caregivers is not just beneficial on an emotional and personal level; it can also lead to substantial savings in healthcare costs.
One of the key components of early intervention is helping caregivers build a support network.
Caregivers who receive early intervention are more likely to experience long-term emotional resilience.
Early caregiver intervention is crucial in managing the complexities of dementia caregiving. It not only improves the quality of life for caregivers and their loved ones but also reduces stress, saves healthcare costs, and builds a foundation for better long-term outcomes. By providing training, emotional support, and a strong network, early intervention empowers caregivers to face the challenges of dementia care with confidence and compassion.
Programs like AGE-u-cate’s Dementia Live® serve as a powerful early intervention tool by offering caregivers an immersive experience that fosters empathy, skills, and understanding, ensuring they’re equipped to provide the best possible care from the very start.
Take Action: If you’re a caregiver or know someone who is, consider participating in programs like Dementia Live®. Early training and support can make all the difference in navigating the caregiving journey with confidence and compassion.
Every year on September 21st, World Alzheimer’s Day shines a spotlight on a critical global issue: dementia awareness. Organized by Alzheimer’s Disease International (ADI), this day is part of World Alzheimer’s Month, a 30-day campaign dedicated to raising awareness, challenging stigma, and advocating for change. Despite the growing prevalence of dementia—an estimated 55 million people worldwide live with the condition—misconceptions and stigma continue to impede progress in diagnosis, care, and support. This World Alzheimer’s Month, it’s time to tackle these challenges head-on and foster a more informed, compassionate, and proactive approach to dementia.
Dementia is one of the most pressing health issues of our time, yet public understanding of the condition remains alarmingly low. According to ADI, almost 80% of the general public express concern about developing dementia, but 1 in 4 people mistakenly believe that nothing can be done to prevent it. This misconception is particularly troubling, given that research suggests up to 40% of dementia cases could be delayed or even prevented through modifiable risk factors such as maintaining a healthy lifestyle, managing cardiovascular health, and staying socially and mentally active.
Even more concerning is the fact that 2 in 3 people still think that dementia is a natural part of aging. This widespread belief not only downplays the seriousness of the condition but also contributes to a culture of silence and shame. Shockingly, 35% of caregivers worldwide admit to hiding a family member’s diagnosis, often due to fear of stigma. This secrecy can lead to social isolation and prevent those affected from seeking the support and care they desperately need.
One of the key messages of World Alzheimer’s Month is the need to break the silence surrounding dementia. Stigma and discrimination are significant barriers to diagnosis and care, with 46% of people living with dementia and their caregivers citing fear of diagnosis and stigma as major obstacles. This fear can delay diagnosis, which in turn delays access to crucial treatment, care, and support services.
An accurate and timely diagnosis of dementia can make a world of difference. It not only helps individuals and their families plan for the future but also opens the door to interventions that can improve quality of life and enable those living with dementia to remain independent for as long as possible. However, low levels of awareness, both among the public and healthcare practitioners, continue to hinder early diagnosis. In 2019, two-thirds of healthcare practitioners still viewed dementia as a normal part of aging, further perpetuating the cycle of misinformation and missed opportunities for early intervention.
As the creator of Dementia Live® and a passionate advocate for dementia-friendly initiatives, I have witnessed firsthand the transformative power of education in breaking down barriers and building empathy. Dementia Live® is an immersive training experience designed to simulate the sensory and cognitive impairments associated with dementia. By giving participants a glimpse into the world of those living with dementia, this program fosters a deeper understanding and empathy, which is crucial for building trust, enhancing caregiver support, and promoting dementia-friendly communities.
Dementia Live® is an essential tool in the fight against dementia stigma. It empowers caregivers, healthcare providers, and community members with the knowledge, skills, and empathy needed to support individuals with dementia and their families. Early intervention for caregivers is particularly important, as it not only improves health outcomes but also reduces healthcare costs in the long run. By equipping caregivers with the right tools and resources from the outset, we can help them navigate the challenges of dementia with confidence and compassion.
This World Alzheimer’s Month, let’s join forces to raise dementia awareness, challenge misconceptions, and break down the stigma that surrounds this condition. Governments, healthcare providers, and communities all have a role to play in increasing awareness, improving diagnosis rates, and ensuring that those living with dementia receive the care and support they need. By normalizing conversations about dementia and promoting initiatives like Dementia Live®, we can create a more inclusive, supportive, and understanding world for everyone affected by this condition.
It’s time to turn awareness into action. Let’s work together to make dementia a priority and ensure that no one faces this journey alone.
As the number of people with dementia rises, the burden on healthcare systems, families, and caregivers increases. Early intervention for caregivers has proven to be a critical strategy for improving health outcomes and reducing costs. Here’s why early intervention matters.
Lower Stress and Burnout: Caregiving can lead to high levels of stress, anxiety, and depression. Early intervention programs provide essential education, teaching caregivers how to manage daily tasks and future planning. Studies show that caregivers who receive early support experience significantly less burden.
Better Coping Strategies: Access to support groups and counseling helps caregivers manage the emotional toll of caregiving, reducing feelings of isolation and burnout. These programs foster resilience, enabling caregivers to provide better care.
Increased Knowledge and Skills: Early training in communication and behavior management equips caregivers to handle the complex needs of their loved ones, improving patient outcomes and potentially slowing dementia progression.
Delaying the Need for Long-Term Care: Effective caregiving at home can delay the need for costly long-term care facilities, resulting in significant savings. A report from the Alzheimer’s Association highlights that delaying institutionalization by just one month can save thousands of dollars.
Reduced Physical Strain: Early intervention programs promote self-care and safe caregiving practices, reducing the risk of injury and helping caregivers manage their own health.
Health Monitoring and Support: Regular health assessments for caregivers ensure they remain healthy and capable of providing sustained care, benefiting both the caregiver and the person with dementia.
Fewer Hospitalizations and Emergency Visits: Early support helps caregivers manage crises and recognize symptoms, reducing the need for emergency medical services and hospitalizations, which in turn lowers healthcare costs.
Lower Long-Term Care Costs: By delaying the need for expensive long-term care, early intervention programs generate substantial cost savings. Research in Health Affairs shows that structured caregiver support can reduce healthcare expenses by improving caregiver health and delaying institutionalization.
Early intervention for dementia caregivers improves the well-being of both caregivers and those with dementia, while also delivering significant cost savings. As dementia becomes more prevalent, investing in these programs is not just compassionate—it’s financially wise.
Healthcare providers and policymakers must prioritize early intervention programs to ensure that caregivers receive the support they need. This strategic investment can improve quality of life for millions and help maintain the sustainability of our healthcare systems.
By focusing on early intervention, we can create a more compassionate, effective, and economically viable approach to dementia care, addressing one of the most pressing healthcare challenges of our time.
Learn how AGE-u-cate Training Institute's Dementia Live® program is an early intervention tool for caregivers.
Family care partners are the backbone of support for aging loved ones, especially those living with chronic conditions or disabilities. These caregivers often face overwhelming responsibilities, including managing medical appointments, administering medications, and providing emotional support. For aging service providers and health plans, building trust with family care partners is essential. Trust is the foundation that allows for effective communication, collaboration, and care delivery. Research consistently highlights the importance of trust in healthcare relationships, showing that it can significantly impact care outcomes, patient satisfaction, and overall well-being. Here’s why trust building is crucial and how service providers and health plans can address this challenge.
Trust between care partners and service providers facilitates open and honest communication. Care partners are more likely to share critical information about their loved one’s condition, preferences, and needs when they feel trusted and respected. This transparency allows for more personalized and effective care planning, ensuring that the aging individual receives the best possible support.
Research Insight: A study published in Health Services Research found that trust in healthcare providers is associated with better communication, higher satisfaction with care, and improved adherence to medical advice. The study also emphasized that trust fosters a sense of partnership between patients, caregivers, and providers, leading to more effective care coordination .
Caregiving can be a highly stressful and emotionally draining role. When care partners trust their loved one’s service providers and health plans, it can significantly alleviate their stress. They feel confident that the professionals involved are competent, compassionate, and genuinely invested in the well-being of their loved one. This peace of mind is invaluable, as it allows care partners to focus on their role without the added burden of uncertainty or distrust.
Research Insight: Trust has been shown to reduce anxiety and stress among caregivers. A study in The Gerontologist found that caregivers who trust their healthcare providers reported lower levels of stress and a higher quality of life. The study concluded that trust is a critical factor in the caregiver experience, influencing both their emotional well-being and their capacity to provide care .
Trust fosters collaboration between care partners, healthcare providers, and service organizations. When there is a mutual sense of trust, care partners are more likely to engage in decision-making processes, adhere to care plans, and advocate for their loved one’s needs. This collaborative approach ensures that all parties are working together towards a common goal: the well-being of the aging individual.
Research Insight: Collaborative care models that emphasize trust and shared decision-making have been shown to improve patient outcomes. According to research in JAMA Internal Medicine, patients and caregivers who participated in collaborative care models reported higher levels of satisfaction, better health outcomes, and more effective communication with healthcare providers .
Despite the importance of trust, building it can be challenging, particularly in complex care situations. Family care partners may have had negative experiences with the healthcare system in the past, leading to skepticism or reluctance to trust new providers. Additionally, the sheer complexity of navigating health plans and services can create confusion and frustration, further hindering trust.
Effective communication is the cornerstone of trust. Aging service providers and health plans must prioritize clear, empathetic, and consistent communication with family care partners. This means taking the time to listen to their concerns, explaining care plans in understandable terms, and providing regular updates on their loved one’s condition. Avoiding medical jargon and ensuring that care partners fully understand the information provided can make a significant difference in building trust.
Empowering care partners with knowledge and resources can help build trust. Offering educational workshops, online resources, and support groups can equip care partners with the information they need to manage their loved one’s care effectively. When care partners feel informed and supported, they are more likely to trust the professionals guiding them through the care process.
Respect is fundamental to trust. Aging service providers and health plans should treat care partners as valuable members of the care team. This means acknowledging their insights, validating their experiences, and involving them in decision-making processes. By fostering a culture of respect and collaboration, providers can demonstrate their commitment to working alongside care partners, rather than dictating care from a distance.
Continuity of care is critical in building trust. Care partners need to feel confident that their loved one’s care will be consistent, regardless of changes in personnel or service providers. Health plans and service providers can address this by establishing strong care coordination practices, ensuring that all team members are on the same page, and providing seamless transitions between different levels of care.
Building trust with family care partners is not just a nice-to-have; it’s a necessity in providing quality care for aging individuals. Research shows that trust enhances communication, reduces caregiver stress, and encourages collaboration, all of which contribute to better health outcomes. Aging service providers and health plans that prioritize clear communication, education, respect, collaboration, and continuity of care can successfully address the challenge of trust building. In doing so, they not only enhance the caregiving experience but also improve outcomes for the individuals they serve.
AGE-u-cate Training Institute's programs prioritize trust building, empathy, compassion and practical skill building that bridges gaps between healthcare providers and those they serve.
This is the last of a three-part series devoted to Aging Services Workforce Development.
This is the second installment in a three-part series addressing retention strategies for aging services providers.
This is the first of three articles about Workforce Development in Aging Services. The focus of the articles will encompass three pillars:
1. Adopting Best Practices to Retain the Current Workforce
2. Creating Non-Traditional Growth and Advancement Pathways
3. Cultivating the Next Generation Aging Services Workforce
This topic is of great importance due to the national and global caregiving crisis for both paid and unpaid caregivers. This series will focus only on paid caregivers, with an acknowledgement that the unpaid caregiver crisis impacts the need and demand for more paid caregivers.
Let's begin the discussion about the Aging Services Workforce by acknowledging that there are many wonderful and committed people caring for elders throughout the continuum of care- 3.7 million according to this LeadingAge Vision White Paper.
Sadly, the massive turnover experienced in this industry will keep the rotating door busy, without even considering the increasing demand due to the aging population.
So, before addressing the need for new entrants, we should begin with discussing strategies to retain our current employees. The LeadingAge Vision White Paper above provides an excellent roadmap of six strategies to build workforce and my intent with this series is to enhance the conversation by approaching the issue of retention from other angles.
In a concerted effort to advance approaches for dementia care, AGE-u-cate™ Training Institute and The Arbor Company are introducing significant refresh initiatives. AGE-u-cate has updated its Dementia Live® white paper to incorporate the latest research and best practices, providing a comprehensive resource for caregivers and healthcare professionals. Simultaneously, The Arbor Company is enhancing Dementia Live within their senior living community landscape by hosting in-person coach training sessions through regional events, ensuring that program coaches are equipped with cutting-edge techniques and insights to foster deeper understanding and empathy for those living with dementia.
Family caregivers of individuals with dementia face unique challenges, often experiencing higher levels of stress compared to caregivers of those with other chronic conditions. According to the Alzheimer’s Association, more than 11 million Americans provide unpaid care for people with Alzheimer’s or other dementias, collectively contributing over 15 billion hours of care annually.
In today's fast-paced healthcare environment, the human touch can sometimes be overlooked. However, research consistently shows that compassionate communication is crucial for patient outcomes, healthcare provider well-being, and overall organizational effectiveness. Let's look at the importance of compassionate communication in healthcare, drawing on key research findings to highlight its benefits and impact.
Dementia, a debilitating condition characterized by a decline in memory, language, problem-solving, and other cognitive skills, poses significant challenges not only to patients and their families but also to health care systems globally. As the population ages, the prevalence of dementia is increasing, leading to escalating health care costs that burden both individuals and health care plans. Despite ongoing efforts, health care plans continue to struggle in effectively reducing the high costs associated with dementia care.
Dementia affects millions of people worldwide, with Alzheimer's disease being the most common form. The World Health Organization (WHO) estimates that around 55 million people are living with dementia, and this number is projected to reach 78 million by 2030 and 139 million by 2050. In the United States alone, the Alzheimer's Association reported that dementia-related costs reached $355 billion in 2021, a figure expected to soar to over $1 trillion by 2050 without significant interventions. According to the Centers for Disease Control and Prevention (CDC), about 5.8 million Americans were living with Alzheimer's disease in 2020, and this number is expected to nearly triple by 2060.
Dementia care is inherently complex and multifaceted. It encompasses medical treatment, long-term care, and supportive services. Patients often require round-the-clock supervision, assistance with daily activities, and specialized care that addresses their unique needs. This complexity drives up costs, making it challenging for health care plans to manage expenses effectively. A study published in the Journal of the American Geriatrics Society found that the average total cost of care for a person with dementia is approximately $287,000 over a five-year period, with long-term care being the most significant expense.
Several factors contribute to the difficulty health care plans face in reducing dementia care costs:
Early Diagnosis and Intervention: Early diagnosis of dementia is crucial for effective management, yet it remains a significant challenge. The Alzheimer's Association estimates that only about 50% of people with dementia are diagnosed at an early stage. Health care plans struggle to implement widespread screening and early intervention programs due to limited resources and varying access to diagnostic tools.
Lack of Standardized Care: There is no one-size-fits-all approach to dementia care. Each patient's progression and needs are unique, requiring personalized care plans. This lack of standardization makes it difficult for health care plans to implement cost-effective, uniform strategies. Research from the RAND Corporation indicates that standardizing care protocols could potentially save billions in health care costs annually.
Caregiver Support: Informal caregivers, often family members, provide the majority of dementia care. However, they receive little support and training, leading to burnout and increased health care utilization. A study in Health Affairs highlighted that caregiver burnout can increase health care costs by 23% due to higher use of emergency services and hospitalizations. Health care plans are challenged to provide adequate resources and respite care for these caregivers to prevent further costs.
Pharmaceutical Limitations: While there are medications available to manage dementia symptoms, they are not curative. The development of disease-modifying therapies has been slow and expensive. Health care plans face the challenge of balancing the cost of these medications with their limited efficacy. According to a report by the Pharmaceutical Research and Manufacturers of America (PhRMA), the failure rate for Alzheimer's drugs in clinical trials is 99.6%, reflecting the high costs and challenges in developing effective treatments.
Long-Term Care Costs: Long-term care facilities and home-based care options are expensive. As dementia progresses, the need for these services increases, placing a significant financial burden on health care plans. Additionally, the quality and availability of long-term care vary widely, complicating efforts to standardize costs. The Genworth Cost of Care Survey found that the median annual cost of a private room in a nursing home was $105,850 in 2021.
Despite these challenges, there are strategies that health care plans can adopt to mitigate the high costs of dementia care:
Promoting Preventive Measures: Investing in public health campaigns that promote brain health and preventive measures, such as cardiovascular health and cognitive training, can help reduce the incidence of dementia. Research from The Lancet Commission on Dementia Prevention, Intervention, and Care suggests that addressing modifiable risk factors could prevent or delay up to 40% of dementia cases.
Enhancing Early Detection: Implementing widespread screening programs and training primary care providers to recognize early signs of dementia can facilitate earlier diagnosis and intervention, potentially slowing disease progression. The CDC's Healthy Brain Initiative emphasizes the importance of early detection in improving outcomes and reducing costs.
Supporting Caregivers: Providing resources, education, and respite care for informal caregivers can reduce their burden and prevent burnout, ultimately lowering health care utilization. The Family Caregiver Alliance reports that supporting caregivers with training and respite care can significantly reduce health care costs and improve patient outcomes.
Expanding Community-Based Services: Developing and funding community-based services, such as adult day care programs and in-home support, can offer more affordable alternatives to long-term care facilities. The AARP Public Policy Institute found that expanding home and community-based services could save Medicaid an estimated $9 billion annually.
Investing in Research: Continued investment in research for disease-modifying therapies and better understanding of dementia can lead to more effective treatments and potentially curative solutions, ultimately reducing long-term costs. According to the National Institutes of Health (NIH), increasing funding for Alzheimer's and dementia research has led to significant advances, but sustained investment is crucial for future breakthroughs.
The challenges in decreasing the high costs of dementia care are multifaceted and complex. Health care plans face significant obstacles, from early diagnosis to long-term care. However, through preventive measures, early detection, caregiver support, community-based services, and investment in research, there is hope for more effective cost management and improved care for dementia patients. Addressing these challenges requires a collaborative effort from health care providers, policymakers, researchers, and communities to ensure a sustainable and compassionate approach to dementia care.
To learn more about how AGE-u-cate Training Institute is collaborating with health care plans, payors and health systems to address community-wide dementia awareness, education, and training, contact us today.
In the dynamic field of dementia care, training programs need to be both effective and adaptable. Evidence-informed dementia training has emerged as a vital approach, offering significant advantages over traditional evidence-based programming. Let's delve into the benefits of evidence-informed dementia training, highlighting its agility and the superior outcomes it fosters in care settings.
Evidence-informed training integrates the best available research evidence with clinical expertise and patient values. Unlike evidence-based training, which relies strictly on research findings often derived from controlled environments, evidence-informed training is more flexible. It allows for the incorporation of real-world clinical experiences and individual patient preferences, creating a holistic approach to dementia care.
Flexibility and Adaptability
One of the primary strengths of evidence-informed training is its flexibility. Dementia care is inherently complex and variable, with each patient presenting unique symptoms and challenges. Evidence-informed training programs can quickly adapt to new research findings, emerging clinical practices, and individual patient needs. This agility ensures that care providers are always equipped with the most current and relevant strategies, fostering a more responsive care environment.
Enhanced Clinical Relevance
Evidence-informed training emphasizes the practical application of research findings. By incorporating the insights of experienced clinicians and the preferences of patients and their families, this approach ensures that the training is not only scientifically sound but also highly relevant to real-world practice. This relevance increases the likelihood that care providers will effectively implement what they learn, leading to better patient outcomes.
Patient-Centered Care
A significant benefit of evidence-informed training is its focus on patient-centered care. This approach recognizes the importance of tailoring interventions to meet the specific needs and preferences of individuals with dementia. By valuing patient and family input, evidence-informed training fosters more compassionate and personalized care. Studies have shown that such patient-centered approaches can significantly improve the quality of life for individuals with dementia and their caregivers (Kitwood, 1997; Brooker, 2004).
Rapid Implementation of Innovations
The agility of evidence-informed training allows for the rapid adoption of new innovations in dementia care. Traditional evidence-based models often require extensive time to gather, analyze, and apply new research findings. In contrast, evidence-informed training can quickly incorporate new insights and technologies, ensuring that care providers are always at the forefront of best practices.
Holistic Care Approach
Evidence-informed training promotes a holistic approach to dementia care. By integrating various sources of knowledge—research evidence, clinical expertise, and patient experiences—this training fosters a more comprehensive understanding of dementia. This holistic perspective helps care providers address not only the cognitive and physical aspects of the disease but also the emotional and social needs of patients.
Evidence-informed dementia training offers a dynamic and comprehensive approach to dementia care. Its flexibility and adaptability allow for the continuous integration of new research and practices, ensuring that care providers remain equipped with the latest tools and knowledge. By emphasizing clinical relevance, patient-centered care, and the rapid implementation of innovations, evidence-informed training enhances the quality of care for individuals with dementia. Embracing this approach can lead to significant improvements in patient outcomes and overall quality of life.
In a field as complex and rapidly evolving as dementia care, the agility of evidence-informed training provides a crucial advantage. By blending the rigor of evidence-based research with the practical insights of clinical experience and patient values, this approach ensures that dementia care remains responsive, relevant, and effective.
If you'd like to learn how AGE-u-cate's evidence-informed programs can provide solutions to your dementia care and training challenges, please contact us today!
References:
June is Brain Awareness Month, spearheaded by the Alzheimer's Association, and it's a crucial time to focus on maintaining and improving brain health. Understanding how to keep our brains healthy can help reduce the risk of neurodegenerative diseases like Alzheimer's. Integrating knowledge from research, global health phenomena like the Blue Zones, and resources from the Alzheimer's Association can provide us with a holistic approach to brain wellness.
Air travel is often riddled with unexpected challenges, and today’s story is no exception. As someone who thrives on learning by doing, I find myself in the midst of one of the most memorable travel misadventures of my life. It's no secret that flight delays have become increasingly common. If you’re fortunate enough to experience a flight that departs and arrives on time, without lost baggage or discomfort, consider yourself luck, right?
This particular journey was anything but smooth. Just ten minutes before our scheduled boarding, the gate agent announced that our flight crew was still en route from the hotel, leading to an initial delay. Her suggestion to go find a restaurant for breakfast, take a walk, or shop should have been a clue about the long wait ahead. I noted her particular words: it was not grab breakfast - it was rather "go find a restaurant and have breakfast" - big difference in time!
Then we Moved to the Automated Updates...
As time ticked by, automated updates pushed our departure time by 30-minute increments, extending our delay to an excruciating 6.5 hours without any human announcements. The frustration among passengers was palpable as we felt trapped in a relentless cycle of hope and disappointment.
Being an observant person and working in the dementia space, I was particularly aware of the number of elderly passengers traveling alone or with companions. One elderly gentleman, accompanied by a very young boy, lost track of his companion after a restroom visit. I quickly reunited them, highlighting the vulnerability of elderly travelers in such stressful situations.
Three hours into the delay, I noticed a couple becoming increasingly distressed. The husband, struggling with mobility, had an accident while attempting to stand. His wife, visibly shaken, asked me to watch their bags while she assisted him. She confided that he was battling Parkinson's disease and his condition was worsening. This emotional moment underscored the significant challenges faced by caregivers during travel delays.
Another elderly woman, traveling alone, appeared confused and anxious. A kind young man offered to help, and she asked him to call her daughter. Her distress was evident, mirroring the unease felt by many older passengers who were not only physically uncomfortable but also emotionally overwhelmed.
Over five hours into the delay, passengers were sprawled across the floor, eyes glued to their screens for the next update. Many older adults, likely unfamiliar with the airline's app, remained uninformed unless they squinted at the sparsely placed, hard-to-read departure signs. While some passengers tried to make the best of the situation by chatting or reading, the delay was a significant source of stress and discomfort for many.
By this point, my nerves were frayed. Realizing that even if the plane eventually departed, I would arrive at my destination very late and miss important meetings, I decided to prioritize my well-being and canceled my flight. It was a tough decision, but necessary under the circumstances. Just an hour after leaving the airport, the flight was officially canceled, 7.5 hours after the scheduled departure.
What is the Solution?
Creating age and dementia-friendly airports involves a multifaceted approach that focuses on accessibility, staff training, clear communication, and supportive infrastructure. Here are key steps airports can take to achieve this:
By integrating these steps, airports can create a more inclusive and supportive environment for older adults and those with dementia, improving their travel experience and overall well-being.
If you would like to find out how AGE-u-cate Training Institute can assist in Age and Dementia Friendly initiatives for airports and airlines, please contact us today!
The World Health Organization (WHO) estimates that 55 million people currently live with dementia worldwide, a figure expected to soar to 78 million by 2030 and 139 million by 2050. This dramatic increase highlights an urgent global health challenge that demands immediate and sustained action.
Compounding this crisis is the alarming number of undiagnosed cases. Research indicates that in high-income countries, only 20-50% of dementia cases are recognized and documented in primary care. The situation is even more dire in low and middle-income countries. For instance, a study in India suggests that 90% of dementia cases go undiagnosed. Extrapolating these findings globally, it’s estimated that three-quarters of individuals with dementia lack a formal diagnosis, thereby missing out on essential treatment, care, and support .
People living with dementia are part of our everyday lives. They are our neighbors, friends, family members, and community members we interact with in places like grocery stores, banks, and community centers and faith communities. While many benefit from strong support systems, advanced technology, home care, adult day centers and senior living, millions are left isolated and struggling in unsafe conditions with minimal support.
The disparity in access to healthcare and support services is glaring. In the United States, zip codes can determine the quality of care and support available to those with dementia. In developing countries, the number of dementia cases is increasing at a much faster rate due to health disparities, escalating the crisis daily.
There is an urgent need for every community, from towns to entire countries, to enhance dementia awareness and caregiver education rapidly. Without such efforts, we risk exacerbating the challenges faced by people living with dementia and their families, leading to unsustainable costs and increased mortality.
The WHO's Global action plan on the public health response to dementia 2017-2025 aims to improve the lives of those with dementia and their carers, while reducing dementia's impact on communities and countries. The plan outlines key areas for action:
While frameworks at various levels are being developed, more needs to be done at a faster pace. Effective models provide a roadmap, but it is stakeholders who turn these plans into reality. At AGE-u-cate Training Institute, we are dedicated to fostering collaborations and partnerships to drive this essential work forward.
If you are part of a community-based organization, government entity, health plan, aging service provider, university, college, or training organization, we invite you to join us in addressing this significant public health crisis. Together, we can enhance dementia awareness, improve caregiver education, and ensure that communities worldwide are better prepared to support those living with dementia.
As our work expands globally, we welcome conversations and brainstorming that will lead to meaningful work. Please contact us today to see how we can make a difference!
By understanding and addressing the growing dementia crisis, we can create a world where individuals with dementia live with dignity, support, and meaning. The time to act is now.
References:
This week, I had the incredible opportunity to speak at the Meals on Wheels Texas Conference, where I shared our impactful Dementia Live® Experience with MOW community partners from across the state. The discussion was eye-opening and highlighted the pressing need for dementia education and awareness within our communities.
During my session, I posed a thought-provoking question to the attendees: "How many of you feel that your communities are Dementia-Ready?" Not a single positive response echoed in the packed room.
Subsequently, I asked, "How many of you have been personally touched by someone living with dementia?" About 80% of the attendees raised their hands, showcasing the widespread impact of dementia in our society.
The rising incidence of dementia and its toll on families is one piece of a significant domino effect on public health. As a caregiver for both my parents affected by dementia, I can say firsthand that there are no words to describe the emotional and physical price of this journey. I want to explore the broader crisis we face: the cost to our communities, public health, health systems, and the stakeholders who are all invested in this space.
First, let's face the reality: the looming aging tsunami, as it has been referred to for decades, is here. It is no longer a futuristic term. With this in mind, planning is accelerating into action at the federal, state, and local levels.
In today's rapidly evolving healthcare landscape, the demand for highly skilled and knowledgeable dementia professionals is at an all-time high. With the dementia crisis reaching critical levels, the need for individuals who are well-trained and credentialed in this specialized field has never been more pressing. Let's delve into why seeking education and credentialing from reputable organizations is crucial for dementia professionals and the overall quality of care they provide.
1. Enhanced Skills for Exceptional Care
Dementia care is a multifaceted domain that requires a delicate balance of technical expertise and compassionate care. Additional education equips professionals with vital skills such as empathy building, effective communication strategies, and specialized care practices tailored to individuals with dementia. These core competencies are indispensable in navigating the complexities of Alzheimer's disease and related dementias, ensuring a higher standard of care for clients and their families.
In today's world, where dementia is becoming increasingly prevalent, it's vital for communities to bridge the gap between knowledge and empathy through comprehensive dementia training. These programs serve as the cornerstone for building trust, enhancing communication, promoting inclusivity, and ultimately fostering a more compassionate and supportive environment for individuals living with dementia. Let's explore how diving into dementia training can create ripples of positive change within communities.
Empathy as the Anchor
At the heart of dementia training lies the cultivation of empathy. By delving into the challenges faced by those living with dementia, training programs dismantle stereotypes and foster a deeper understanding among participants. This newfound empathy becomes the anchor that grounds interactions, leading to increased compassion and respect for individuals affected by dementia. As empathy blooms, so does trust, laying a solid foundation for meaningful connections within the community.
Navigating the Waters of Communication
Effective communication is the bridge that connects individuals, especially when engaging with those living with dementia. Dementia training equips participants with essential communication strategies tailored to the unique needs of individuals with cognitive impairments. Techniques such as using clear language, maintaining eye contact, and practicing active listening become navigational tools in fostering meaningful conversations. As communication barriers dissolve, trust builds naturally, creating smoother sailing in community interactions.
This article aims to delve into the importance of adopting strategies for preventing elder abuse.
Throughout my 32-year tenure in leadership roles within nursing homes, I consistently encountered frustration due to the scarcity of resources, both in terms of time and finances, as well as the absence of thoroughly researched and effective strategies for proactively preventing elder abuse. Despite implementing standard measures such as employee background checks, mandatory annual in-service training, and policy review during new hire orientations, I often sensed a lingering feeling that there was more we could do. Looking back, I now recognize that we also fell short in adequately educating family members on abuse prevention. However, one aspect where we excelled was in promptly reporting allegations, which appeared to hold utmost importance from a regulatory standpoint, regrettably so.
Whether a professional working with elders living in the community or congregate care, does your agency do enough? Can you identify and describe the organizational strategy to prevent abuse?
While healthcare is making stride forward, one issue is reaching a critical point that demands urgent attention - dementia. According to the latest statistics from Alzheimer's Disease International, over 10 million new cases of dementia emerge each year worldwide, equating to one new case every 3.2 seconds. Yet, these alarming figures only scratch the surface, as many individuals living with dementia remain undiagnosed. We find ourselves at a global tipping point, necessitating bold and innovative measures to address this crisis head-on.
Dementia readiness is not merely a valid consideration; it is a mandatory imperative for stakeholders across the spectrum of healthcare and aging services. CMS data reveals that dementia ranks as the fourth most costly chronic condition, signaling a financial burden that is escalating with the growing number of affected individuals. The urgency to act is evident, and to navigate this crisis effectively, we must collectively embrace transformative strategies.
In a world that is constantly evolving, facing new challenges, and making strides in healthcare, one issue is reaching a critical point that demands urgent attention - dementia. According to the latest statistics from , over 10 million new cases of dementia emerge each year worldwide, equating to one new case every 3.2 seconds. Yet, these alarming figures only scratch the surface, as many individuals living with dementia remain undiagnosed. We find ourselves at a global tipping point, necessitating bold and innovative measures to address this crisis head-on.
Dementia readiness is not merely a valid consideration; it is a mandatory imperative for stakeholders across the spectrum of healthcare and aging services. CMS data reveals that dementia ranks as the fourth most costly chronic condition, signaling a financial burden that is escalating with the growing number of affected individuals. The urgency to act is evident, and to navigate this crisis effectively, we must collectively embrace transformative strategies.
As Alzheimer's Disease and related dementias continue to rise at exponential rates, there is a pressing need for innovative solutions to address this growing epidemic. The concept of dementia capable systems has emerged as a vital initiative at the federal, state, and community levels to create a supportive environment for individuals living with dementia. Let's delve into the definitions of key terms such as dementia capable, dementia capable systems, dementia friendly communities, and dementia capable care, shedding light on the multifaceted approach required to combat this challenging issue.
Dementia Capable:
Dementia capable, as defined in the U.S. national dementia plan, encompasses activities and enjoyments that support the personhood of individuals living with dementia. It also emphasizes empowering care partners with knowledge, skills, and competency to enhance the quality of life for those affected. This broad scope recognizes the importance of addressing both the needs of individuals with dementia and those providing care.
Caring for individuals living with dementia can be challenging, particularly when their reactions become physically and/or verbally sexual in nature. Care Partners play a crucial role in creating a supportive environment that addresses the unique needs of the person living with dementia while maintaining dignity and safety for all involved. Here are some helpful tips and tools for care partners to keep in their tool box while helping people with sexually related stress reactions.
Identify Potential Triggers
Identify potential triggers for sexual reactions, such as unmet needs, providing care, or environmental factors. Keep a record of when these reactions occur to recognize patterns and address them.
Questions to ask:
The United States is currently facing a severe shortage of healthcare workers who are equipped and prepared to care for the aging population. This shortage is only expected to increase in the coming years, which will ultimately put a tremendous burden on the healthcare service delivery system. According to the U.S. Department of Health and Human Services Administration on Aging, approximately 40 million people in the U.S. were aged 65 or older in 2009, and this number is expected to reach at least 72 million by 2030. The majority of healthcare services are focused on older adults, making it crucial to have a sufficient elder care workforce.
One approach to addressing this shortage is to encourage college students to choose careers in elder care. However, there are several barriers in place that make this a challenging goal. Social phenomena such as ageism, lack of awareness of the need for workers, and a general lack of interest in and contact with older adults have been identified as factors that steer students away from working with seniors.
So, how can we motivate students to enter the elder care workforce? One promising solution is service learning.
This educational approach involves combining classroom instruction with community service projects that enrich students' learning experiences and promote civic engagement. Service learning has been shown to positively impact students' career choices and improve their attitudes towards working with older adults.
The alarming statistics surrounding Alzheimer's and dementia in communities of color cannot be ignored. Black Americans are twice as likely as older Whites to have Alzheimer's or another dementia, and Latinos are 1.5 times as likely, according to the Alzheimer's Association. While higher rates of cardiovascular disease may play a role, some studies suggest that these differences disappear after accounting for overall health and socioeconomic status. Regardless of the cause, the prevalence of dementia in Black and Brown communities is a public health crisis that demands immediate attention.
In the hustle of healthcare advancements, the essence of caregiving often gets overshadowed. Nowhere is this truer than in dementia care, where the personal and emotional aspects of caregiving are frequently sidelined by clinical approaches. Let's delve into why returning to the human side of dementia care is not just essential but transformative.
In the dynamic and challenging field of aging services, fostering a workplace culture that prioritizes empathy, generosity, and happiness can significantly impact employee retention. As professionals navigate the complexities of providing care and support to older adults, the emotional well-being of employees becomes a crucial factor in ensuring both quality service delivery and sustained job satisfaction.
Through her extensive work in supporting initiatives of DAA and her experience living with dementia, Laurie is a strong advocate for quality of life. She was diagnosed with young onset dementia in August of 2013 at the age of 55. Unable to continue a professional career she turned her focus towards helping others through their dementia journey, Laurie and her husband, Roy, work continuously to identify triggers that cause her confusion and they make adjustments to overcome obstacles. Laurie is a Dementia Mentor and is active in many support groups. On her website, dementiadaze.com, Laurie shares her feelings, challenges, symptoms, and adjustments in hopes of encouraging other individuals and families living with dementia to explore ways to live beyond dementia.
Sympathy and empathy are two terms often used interchangeably, but they have distinct meanings and implications in the realm of human emotions and relationships. These differences are not merely linguistic; they carry significant weight when it comes to understanding and responding to the emotions of others. Let's delve into the disparities between sympathy and empathy, and why it is so important to differentiate these two approaches in dementia care.
Dementia is a prevalent and challenging health issue affecting millions of individuals and their families around the world. As the population ages, the incidence of dementia is expected to rise, making it crucial to prioritize education and support for both patients and their caregivers. Community health workers (CHWs) can play a pivotal role in providing dementia education, and their involvement can have far-reaching benefits for the community.
Increasing Awareness: Dementia education delivered by CHWs can help raise awareness about this condition within the community. By disseminating information about the early warning signs and risk factors, CHWs empower individuals to seek timely diagnosis and support. This awareness is essential for early intervention, which can significantly improve the quality of life for those living with dementia.
Reducing Stigma: Dementia education can help dispel misconceptions and reduce the stigma associated with the condition. By sharing accurate information about dementia's causes and progression, CHWs can foster empathy and understanding, making it easier for patients and their families to access the necessary care and support without fear of judgment.
Providing Caregiver Support: Caring for someone with dementia can be emotionally and physically demanding. CHWs can offer caregivers invaluable information on how to provide effective care, manage behavioral changes, and access local resources. This support system can alleviate the stress of caregivers and enable them to provide better care for their loved ones.
Improving Early Detection: CHWs can be trained to recognize the early signs of dementia during their interactions with community members. This early detection can lead to prompt diagnosis and intervention, potentially slowing the progression of the disease. Additionally, CHWs can guide individuals towards healthcare professionals for a more comprehensive evaluation.
Enhancing Quality of Life: Education provided by CHWs can equip patients and caregivers with strategies for managing dementia-related challenges. These strategies can include communication techniques, cognitive stimulation activities, and emotional support. By improving the quality of life for those with dementia, CHWs contribute to a more resilient and healthier community.
Connecting Communities to Resources: CHWs can serve as a vital bridge between the community and dementia-related resources. They can help individuals access support groups, government assistance, respite care, and other services that can significantly improve the well-being of those affected by dementia.
Promoting Healthy Lifestyles: Dementia education provided by CHWs can also include information on lifestyle factors that can reduce the risk of developing dementia. Promoting healthy habits, such as regular exercise, a balanced diet, and mental stimulation, can help prevent or delay the onset of dementia. This proactive approach benefits the community's overall health and well-being.
Enhancing Cultural Competency: CHWs, often members of the community they serve, are well-positioned to provide culturally sensitive dementia education. They can tailor their messages to specific cultural and linguistic needs, ensuring that information is accessible to all members of the community.
Cost-Effective Care: Dementia is a costly condition to manage, both for individuals and healthcare systems. By educating the community through CHWs, cost-effective preventive measures can be implemented. Timely interventions and support can potentially reduce the economic burden associated with dementia care.
Promoting Empowerment: Dementia education through CHWs empowers community members to take an active role in their own health and well-being. When people are equipped with knowledge, they are better prepared to make informed decisions about their health, leading to more self-reliant and resilient communities.
Community health workers can be instrumental in providing dementia education to communities. Their work contributes to increased awareness, reduced stigma, early detection, enhanced quality of life, and cost-effective care. By fostering healthier and more informed communities, CHWs create a ripple effect that benefits not only those living with dementia but the entire community. Dementia education through CHWs is a holistic approach to improving public health and ensuring a brighter future for those affected by this complex condition.
Find out how millions of people in communities are engaging in impactful dementia education with AGE-u-cate Training Institute's Dementia Live simulation experience.
Empathy training and skill-building tools are crucial for individuals involved in hospice care, whether they are professionals or family members. Hospice care is a specialized form of support designed to offer comfort and assistance to individuals nearing the end of their lives. It usually takes place in a home or hospital setting and requires a high level of empathy and compassion from those providing care.
As communities work to better serve and support individuals living with dementia and their caregivers, adult day centers are proving to be invaluable resources for meeting a variety of needs.
In the ever-evolving landscape of senior living, a noticeable trend has emerged over the past few years, gaining even more momentum in the wake of the pandemic. Seniors across the country are redefining their preferences, gravitating towards alternatives like home care and community-based services such as adult day care. The desire for independence and the comfort of aging in a familiar home environment have driven this shift, but it's essential to recognize that this decision isn't without its implications.
As of July 31, 2023, The Centers for Medicare and Medicaid Center for Innovation (CMS) announced a new payment model designed to promote care and support for people with traditional Medicare insurance or dually eligible for Medicare and Medicaid living with dementia in the community.
Empathy is our desire and willingness to see as others see and to feel as they feel. Perhaps Atticus Finch said it best in Harper Lee’s To Kill a Mockingbird:
In the world of aging services, empathy and understanding are the cornerstones of being a care partner. While care partners provide essential physical support, it is the emotional connection that truly sets them apart. Overture Home Care, a leading senior care provider, has embraced our powerful training program called Dementia Live® that nurtures empathy and understanding among their care partners. This program aims to create a deeper bond between care partners and those they care for, ultimately making a profound impact on the lives of those they serve.
Take a look into Overture Home Care’s experience with Dementia Live
The Challenge of Caregiver Turnover
The senior care industry faces a significant challenge in the form of caregiver turnover. According to Home Care Pulse, the average turnover rate in the industry is a staggering 77%. Frequent turnover not only disrupts the continuity of care but also affects the emotional well-being of the elderly who often form strong bonds with their caregivers. However, Overture Home Care stands out with a remarkably low turnover rate of 30 - 33%.
The AGE-u-cate Difference
So, what sets Overture Home Care apart from others in the industry? The answer lies in their commitment to empowering caregivers through comprehensive training, particularly with our Dementia Live program. This program is designed to help care partners understand the challenges faced by those they care for, particularly those living with dementia, on a deeper level. By immersing caregivers in simulated experiences that mimic the sensory and cognitive impairments of dementia, they gain valuable insights into the daily struggles faced by those they serve.
Empathy and Connection at the Core
At the heart of the Dementia Live program is the emphasis on empathy and connection. Care partners are encouraged to put themselves in the shoes of the elderly, experiencing firsthand the confusion, frustration, and vulnerability that dementia can bring. This unique approach fosters a deeper level of understanding, compassion, and patience.
Discussion or Group Discussion is also referred to as Cooperative Learning. This active study method can lead to higher retention rates and greater skill-building outcomes when applied to dementia training.
The World Health Organization has declared Dementia a public health priority (WHO,2020) and called for global action to establish Dementia-friendly initiatives. Global communities are mobilizing stakeholders, volunteers, and community leaders to push forward on this movement.
The challenge with many initiatives is creating a framework that moves the needle on widespread community buy-in and understanding of the mission. Without an innovative approach, there is a higher risk of stagnation or even failure. This should not be an option.
The need for Dementia friendly communities is at a critical juncture. We must prepare for the projected 82 million people living with some form of Dementia by 2030 (WHO). Community populations must shift their thinking by bringing impactful awareness, education, and resources to the broader community.
Innovative programming reduces duplication of services from others who are serving the community. Assessing the services of other community organizations must be a first step in creating a programming model and will help create the organization's mission, vision, and values.
After careful assessment, the organization can look at filling needs with innovative, creative programming. A great example of innovative and robust programming was a project undertaken by Dementia Friendly Fort Worth (TX). Shortly after the Pandemic took hold, and it was clear that in-person activities would be on hold, a daily virtual social program was created to serve the needs of older adults living at home. The program flourished by collaborating with local arts organizations and individuals who brought new and vibrant activities!
The virtual program met a need, was different than what other organizations were doing, and, equally important, opened doors to funding from our local Area Agency on Aging and United Way.
Innovation will spur funding!
The best community missions need funding to fulfill their mission. To do this, securing financial support allows for solid strategic planning and growth. They work hand-in-hand, especially as the organization gets up and running. DF initiatives need to work smart and have a framework for data and outcomes tracking on all programming activities. The goal is positive results and being able to assess this early on so that any adjustments that move the needle can be made. Or, if outcomes don't improve, the program may have to be dropped. Successful programming pushes an organization forward while garnering community support.
Every community is different, and each DF organization will be unique, which is what makes the diversity of this movement so exciting. If you are a stakeholder in a Dementia Friendly initiative, I urge you to connect with others who are paving the way and learn from their successes and challenges. Develop a network of leaders with whom you can share innovative programming and funding ideas. As part of the Dementia Friendly Fort Worth Board, I have the honor to talk with colleagues from around the country seeking advice and with whom I can gain tremendous insight to share with our organization.
If you are seeking innovative programming, I would be honored to talk with you! AGE-u-cate is committed to serving the global movement of Dementia Friendly communities with dynamic, creative, and impactful outreach programming.
Scores of higher education institutions across the United States offer educational tracks that guide students toward careers in Health Sciences and Aging Services. Internships are a capstone event for many programs and influence career decisions. Making the most of an internship opportunity is paramount to ushering in new talent to the Aging Services Profession.
Whether dementia is referred to as a public health issue, priority, or crisis, the urgent need for communities globally in creating dementia-capable systems is at a critical point.
Patients with dementia form a fast-increasing proportion of those entering hospice care. Is your staff prepared to compassionately care for the unique needs of people living with dementia?
Anyone reading this will understand the chaos that aging service providers have experienced in recent years. I'm sure you will agree that the pandemic's domino effect on staffing shortages is nothing short of excruciating. Thankfully, it has prompted stakeholders to think outside the box, re-look at their practices and reboot.
Aging Service Providers across the spectrum are well aware of the social isolation and loneliness public health crisis among older adults, especially people living with dementia.
According to IHS (Indian Health Service), cognitive impairment and dementia affect individuals and families in all tribal and urban Indian communities. The prevalence will increase dramatically as the population ages. By 2060, the number of American Indian and Alaska Native people aged 65 and older living with memory loss is projected to grow over five times. This funding opportunity provides greater flexibility and enhanced access for new awardees to address their communities’ unique and growing needs.
Dementia training and education are all the buzz these days. We need to better prepare our workforce, families, and communities for rapidly rising rates of people living with dementia. How do we tackle this public health priority as we move forward in creating dementia-friendly societies? To better prepare our workforce, families, and communities for this public health priority, we need innovative approaches. One such approach that has shown great promise is experiential learning, which offers a unique and effective way to educate and empower care partners, families, and communities to create dementia-friendly societies.
Let's first discuss the framework of experiential learning. This model offers a uniquely high retention and growth opportunity for participants surpassing traditional education methods. Experiential learning uses a blended education approach, including activity, reflection, communication, feedback, and observation.
So what is the secret sauce to the powerful components of experiential dementia learning and education?
1. Learning by Doing
At the heart of experiential learning is the idea of learning by doing. Unlike traditional classroom style or online learning, experiential learning engages the senses and encourages participants to tap into their own feelings and emotions. By immersing themselves in the experience of living with dementia, participants gain a deep understanding from the inside out, leading to higher retention and growth opportunities. This approach breaks down the barriers to traditional classroom style or online learning by engaging the senses and encouraging the participant to tap into feelings that they experience themselves.
2. Learning through Reflection
In our high-tech, high-speed world, the power of silence and reflection is often a component that is missing in traditional training methods. Experiential learning allows one to walk through an experience soulfully and thoughtfully. By tapping into the powerful emotions one can experience living with dementia, learning takes place from the inside out.
3. Learning by Application
Instead of traditional fact-checking and testing, experiential learning effectively walks the participant from the "aha" moment to apply skills and tools that make sense. The participant bridges the inside-out sensory and emotional experience through this process with greater application to real-world scenarios.
In my last blog,I discussed the steps to prolong your caregiver training program, focusing on sustainability. Now I want to take our discussion one step further to level up your caregiver training.
For those who have followed my last 5 blog posts, I've delved into the topic of caregiver training and education - and how to take it to the right level. Phew! Lots of content to consume. Last week, I discussed how to measure the impact of your training. Next in this series, I want to discuss prolonging the life of your training program.
On one of our latest blogs, we provided guidelines on measuring training effectiveness.
Now let's look at measuring training's financial impact.
Last week I discussed the concept of Empowered Skills and provided a checklist for evaluating the effectiveness of your training program. Proper evaluation of your training programs will ensure you have a process in place of requesting and receiving feedback from caregivers on the training you've provided. Training is only effective if you know what caregivers are thinking.
Last week I talked about the shift to experiential learning and the vast benefits "learning by doing" has to participant-facing training. Now let's discuss a concept called empowered skills.
If you read my blog last week, I discussed focusing on what works in caregiver training and education, utilizing core guiding principles and steps to create an effective training program. There are many benefits to training that works, the most important being just that! The results will speak for themselves when you take your training to the right level.
Given today's staffing shortages and high turnover, let's set achievable goals for dementia training. After all, at the end of the day, don't we all want to be able to say, "the training works simply!". Of course, we do. If training works, that means it aligns with business goals and achieves positive outcomes.
"The goal of any training should be to empower caregivers, give them the tools to work with, and be flexible enough with the material to honor the uniqueness and diversity of each individual you work with." – Dr. Rose Joudi, Aging & Ethnic Diversity Consultant.
What does training mean?
Training is the action of teaching a person a particular skill or type of behavior.
In aging services, this means showing caregivers how to identify different scenarios and conditions to best care for sub-groups of older adults across emotional, physical, and other elements of health. In addition, training includes learning how a caregiver can take care of themselves in moments of stress and challenging situations. But is something else missing when we look through the lens of aging services and training trends? Let's dig into this a bit more.
Although there is no one-size fits all for training, there are some guiding principles to keep in mind as a helpful guide:
Utilizing these principles, the following steps will help guide you in an effective dementia training program:
With NBA's basketball season in full swing and NFL's Superbowl around the corner, no one doubts the incredible impact a good coach has on developing both the physical and mental strengths that lead to the success of sports teams. Today, coaches are proving their value in a diversity of areas: Whole Life Coach, Communications Coach, Wellness Coach, Career Coach, Weight Loss Coach, Business Coach, and even Relationship Coach.
In the sea of dementia care training, leaders can be overwhelmed when evaluating options. This article provides practical guidance if you are just getting started in creating a dementia training program or if you are re-evaluating current practices.
Before you learn the six components that define quality dementia care training, I'm going to discuss four fundamental truths:
We Must Educate, Engage, and Retain Employees
Aging service providers are experiencing dangerously high staff shortages that impact the quality of care, employee retention, and family satisfaction. These together directly affect the bottom line.
Studies reveal a correlation between the lack of investment in care team education and turnover, with staff reporting feeling ill-prepared for their work with older adults, especially those with memory loss. It's time for a change!
By 2050, the world's population of people ages 60 years and older will double (2.1 billion). The number of persons aged 80 years or older is expected to triple between 2020 and 2050 to reach 426 million (WHO).
Global communities face the complex challenges of an aging population that far outpaces the current capacities of healthcare and community services.
Aging service providers across the landscape urgently need practical and effective education and training that prepare and equip the workforce, families, and those who, in any capacity, serve the aging population.
Take a listen to a conversation between two industry leaders talking about training and education evolutions and strategies for success.
(Make 2023 a Year Committed to Goals that Matter)
"Our very survival depends on our ability to stay awake, to adjust to new ideas, to remain vigilant, and to face the challenge of change." – Martin Luther King Jr.
As a provider of care services to elders, you know all too well that difficult conversations with family members are a common course of business. There are many situations where a family member is unable to physically visit their loved one except when traveling or off of work or school around the holidays. Naturally, after not seeing their loved one for a length of time changes will have taken place, and this can cause a variety of responses – all of which necessitate a helpful and informative reply. The goal is to make them feel comfortable and at peace like after the first sip of hot cocoa on a cold winter day. How do you prepare for those tough interactions? Do you feel as though the conversations are effective and well-received?
Getting together with loved ones during the holiday season is one of the season's great joys. But, unfortunately, too often, our visits with our elders end up being a disappointment. Why?
Many times the reason is simply poor planning. For example, we haven't talked to other family members who can share updates on their physical, cognitive, or emotional health. Or, we assume that everything is status quo without checking in first and asking questions.
Like us, elders change. The difference is that older adults with a chronic illness or cognitive changes are more likely to experience more dramatic fluctuations in their abilities.
So, preparing for a family visit is one of the essential tasks to ensure an engaging visit! Here are a few tips that will help family members and loved ones avoid a disappointing visit:
Recently I had the pleasure of connecting with Alena Dailey, Integrative Arts Manager for Hospice of the Chesapeake while hosting AGE-u-cate's quarterly chat for Compassionate Touch® coaches. Have you ever connected with someone and instantly felt a sense of comfort? Like you've known this person forever, but you just met? That's what it was like talking to Alena! She's passionate about elevating quality of life for elders and creative in how to accomplish her mission. Here's a simple yet powerful quote from Alena:
“A lot of people forget patients still need human touch”
"Preparing our healthcare professionals to work with the aging population must include quality dementia training. We've found the gold standard with Dementia Live🅡", Michelle Kimzey, Ph.D., Assistant Professor, Texas Christian University Harris College of Nursing and Health Sciences.
A delightful benefit of being a part of the AGE-u-cate team is being inspired by our clients and seeing the impact of our programs on their business.
Last Spring I had the pleasure of connecting with Ellie Webb, Dementia Care Specialist for the Aging and Disability Resource Center (ADRC) of the North in Wisconsin. That connection led to an in-person visit to train Ellie and 9 other team members from surrounding counties supported by the ADRC of the North to become Dementia Live® Coaches. Apart from the beautiful drive through rural Wisconsin as I made my way to the tip of the state on the coast of Lake Superior, spending time with such passionate people anchored in a similar mission to ignite change for their communities filled by buckets and my soul! View my full LinkedIn post for more pictures.
With CMS adding new metrics for turnover and staffing levels into the star system, healthcare leaders are looking for meaningful ways to retain staff. Employee empowerment is one key area of employee satisfaction often overlooked in a task-driven culture. A recent survey found that 2,034 nursing home administrators revealed a greater staff empowerment practice score was positively associated with greater retention.
II was so grateful for having the opportunity to sit in on the recent ActivitiesStrong Summit hosted by Linked Senior, Activity Connection, NAAP, and NCAAP. This yearly event aims to acknowledge, educate and empower activity and life enrichment professionals and celebrate the longest day in honor of everyone living with cognitive change to honor the professionals who serve older adults in senior living.
The workforce crisis in long-term care lingers as organizations desperately try to climb out from under the effects of the pandemic. The problem is so complex it feels too overwhelming to tackle, yet the current situation is not sustainable. The stress on administrators and the leadership team is taking a toll. Ensuring quality of care is simply impossible without a full complement of staff.
Human Resources professionals are working furiously to get people in and are gaining no ground due to turnover. The process of recruitment, hiring, and onboarding needs to be dramatically re-tooled to include intentional retention strategies.
The first hurdle is to create a new story about why someone should want to work in the aging services industry, and secondly, why long-term care?
The hard facts are important such as wages and benefits, work schedule, number of paid days off, etc. But there must be more to the picture. This industry has so much to offer that it should not be such a struggle to entice people to work for us.
Find ways to differentiate your community and make it easier for a recruit to say yes.
Gather insight from your leadership team and a sample of employees with this recruitment and retention temperature tool. An effective strategy can begin with first understanding your organization's strengths and areas for improvement.
About the author:
Julie joined the AGE-u-cate team in 2020 after working 31 years in nursing home operations. Starting in social services and admissions, she moved into management and executive positions in 1990 after obtaining an Illinois nursing home administrator license. Her passion for dementia capable care came early in her career when she had the good fortune to work with and learn from culture change pioneers. Julie is also an adjunct instructor in Gerontology and Aging Services at Northern Illinois University in DeKalb, IL. She lives in the Northwest Chicago Suburb of Schaumburg, Ill.
Searching for effective Quality Assurance/Performance Improvement (QAPI) Projects for Certified Nursing Communities is daunting. From finding the right project to looking for available resources can become challenging in our post-pandemic environment.
Fortunately, the Centers for Medicare and Medicaid (CMS) are legislatively mandated to provide funding to states for projects that improve the quality of life and the quality of care in certified nursing communities. The program is the Civil Monetary Penalty Grant Program (CMP).
The Civil Monetary Penalty Grant (CMP) program takes a portion of fines paid by nursing communities for regulatory infractions and funnels dollars back to states that accept applications to expend funds for projects that improve the quality of life and care for residents living in dually certified nursing communities. AGE-u-cate writes grant applications to states to bring our programs to dually certified communities at no cost to them.
Dually certified communities that decide to engage with AGE-u-cate on a grant project pay nothing because the funds are provided through the state directly to AGE-u-cate. This model allows the community to focus on performance improvement without the financial stress truly. Note: Every state implements CMP projects differently, so please check with us first.
Dually certified communities are required by federal regulation to engage in projects that measure and drive improvement in quality outcomes. It takes a lot of time to create an effective initiative from the ground up and keep all the balls juggling; this is where AGE-u-cate can assist. Our no-cost grant projects are organized as "QAPI in a box." We give communities all the tools needed to implement a project and measure the impact to staff and outcomes for the residents. You don't need to create the wheel because we've already done that work.
We will support the application process every step of the way and work with you to customize the project to fit your specific needs.
AGE-u-cate provides you with the resources to train, educate and build staff skills that will directly benefit your residents, which is a key component of any CMP project. All three AGE-u-cate programs have realized positive outcomes, and we provide you with support to sustain the program and collect outcomes.
Projects include online training for designated program coaches, onsite training for all staff delivered by an AGE-u-cate Certified Master Trainer, and subscriptions for our one-hour device-enabled microlearning staff training modules that reinforce the key components of each program and promote sustainability.
If your community needs a boost in Dementia Training, consider our program Dementia Live, a high-impact dementia simulation experience that immerses participants into life with dementia, resulting in a deeper understanding of what it’s like to live with cognitive impairment and sensory change.
If you need to equip your staff with a tool that reduces and even prevents resident stress reactions from residents in their care, consider Compassionate Touch, a caregiving approach that includes skilled touch and specialized communication shown to prevent stress reactions for people living with dementia and enhance the quality of life for those in later stages of life. Through this program, care partners also enjoy the benefits of reduced stress and increased job satisfaction associated with positive human connections.
Reading2Connect® is a resident-directed, Montessori-based program that provides staff training and specialized reading materials to engage residents of all abilities. The Reading2Connect® Program sparks residents’ imaginations, personal stories, laughter, an interest in learning, and much more. This program empowers residents, fostering enthusiastic participation, independence, and social connections.
Please don't hesitate to reach out and start the process. Our job is to make your job easier!
More information about accessing CMP funds
What is a Dementia Simulation?
Dementia simulation allows students to walk in the shoes of those with dementia- to experience the world as they experience it. We explain Dementia Live® as the 'Inside-Out' experience, allowing participants to take that deep dive into understanding what it might be like to live with the extraordinary physical and emotional challenges accompanying cognitive change.
When we think of the word "home" it elicits more emotions and memories than any other word in the English language. Do we in Aging Services give enough consideration to the emotional impact that leaving home has on elders? Imagine leaving home and believing you will never return. Are we doing enough as caregivers to recognize and acknowledge the impact leaving home has on elders?
As we age, the need to relocate may occur several times. People may move from an established home of 40 years to a retirement community with desirable amenities or smaller quarters to reduce the burden of property upkeep. They may even move to be closer to family or a residential care facility. An important consideration for families and caregivers is the possible impact of relocation. What do we do to help?
Our natural responses could be: "It's OK, this is your new home" or "It just takes time to adjust." Many of us want to respond by giving advice, trying to cheer up our elderly family member, or changing the subject. We mean well, but these responses stifle communication and understanding things from another person’s viewpoint. No doubt, these are sincere efforts to comfort and reassure, but let's consider how we can take our compassion one step further by employing empathy.
Empathy is putting yourself in someone else's shoes in order to imagine what they are going through, understand, and even share their feelings.
According to Stanford University graduate Ted Talker Mike Robbins, empathy is one of the most critical aspects of creating solid relationships, reducing stress, and enhancing emotional awareness.
His 2021 blog provides the following benefits of empathy:
After acknowledging the feelings, you can then continue by validating, "It must be hard to miss your cat so much." Giving your care partner the time to express feelings and then validating those feelings is the most helpful approach you can offer because you cannot change anything about the reality of the situation.
Can empathy be taught? Absolutely! Would your staff benefit from a deeper understanding of empathy?
About the author:
Julie joined the AGE-u-cate team in 2020 after working 31 years in nursing home operations. Starting in social services and admissions, she moved into management and executive positions in 1990 after obtaining an Illinois nursing home administrator license. Her passion for dementia capable care came early in her career when she had the good fortune to work with and learn from culture change pioneers. Julie is also an adjunct instructor in Gerontology and Aging Services at Northern Illinois University in DeKalb, IL. She has two adult children and lives in the Northwest Chicago Suburb of Schaumburg with her husband and three fur babies. She is convinced that she was a lounge singer in a former life.
This month is Asian American and Pacific Islander Heritage Month. Age-u-cate is excited to prove an introspective view into caregiving within the Asian community from one of its own.
Dementia Competencies and How to Choose Good Education
Hosted by Joan Devine, the Pioneer Network presented an outstanding webinar entitled, "Dementia Competencies and How to Choose Good Education." The Dementia education universe is vast and varied, and it can be difficult to navigate to the most effective and relevant training.
The opening message offered by presenter Kim McRae, Founder of "Having a Good Life" and Co-Founder of the Culture Change Network of Georgia is that we should not use "Alzheimer's" as the general term for dementia. This causes a lot of confusion and marginalizes those living with dementia not related to Alzheimer's. As leaders, we need to be consistent in and steadfast in understanding this important distinction.
Jennifer Craft Morgan, Director and Associate Gerontology Professor at Georgia State University made a salient point that education and knowledge acquisition is important, but it must lead to skill-building. "Surface learning" alone will not change employees' care approaches.
Improving education and training and developing supports for direct care workers to implement skills in context has the potential to transform the workforce to a dementia-capable, culturally competent workforce. - Jennifer Craft Morgan.
Check out quality education programs provided by AGE-u-cate here:
So, if change is what we are after, then the first criteria to evaluate is whether the chosen curriculum will result in modifying employee care actions.
Kim McRae, Founder of "Have a Good Life" and Co-Founder of the Culture Change Network of Georgia cautioned listeners to avoid narrowly viewing people living with dementia from the standpoint of loss and deficits. In doing so, we create stigma, loss of well-being and excess disability. Training must un-do the "patients vs people" approach of the past and inspire the workforce to see the human being first.
The speakers then discussed language that should be used in training curriculum, because words absolutely matter.
"Living with dementia vs suffering with dementia"
"Responding to stress reactions vs managing unwanted behaviors"
Just as important as the content is the delivery. The presenters asked attendees to think back to their last training and identify the things that the instructor/training did that didn't support learning.
Helpful list of what not to do
Another critical point is that training should not be one-and-done. Learning must be consistent and ongoing, and reinforced by leadership. Leaders need to excite their employees! Talk with them about what they learned and how it can be applied to achieve person-centered care and improve the quality of life for elders.
In summary, training curriculum as offered by Ms. McRae and Dr. Morgan should:
Many thanks to the Pioneer Network and presenters for this critical and timely information.
About the author:
Julie joined the AGE-u-cate team in 2020 after working 31 years in nursing home operations. Starting in social services and admissions, she moved into management and executive positions in 1990 after obtaining an Illinois nursing home administrator license. Her passion for dementia capable care came early in her career where she had the good fortune to work with and learn from culture change pioneers. Julie is also an adjunct instructor in Gerontology and Aging Services at Northern Illinois University in DeKalb, IL. She has two adult children and lives in the Northwest Chicago Suburb of Schaumburg with husband and three fur-babies. She is convinced that she was a lounge singer in a former life.
1. Your Program is More Than a Calendar
The calendar is only 25% of engagement in your community. The remaining 75% is just as critical; resident discovery, fostering new and ongoing relationships between staff to residents and staff to staff, communication tactics, and partnerships with the greater community.
2. What if Residents Had a More Active Role in the Planning Process?
The approach to creating a calendar can look different! Resident designed. Weekly approach versus monthly approach.
3.Community Engagement = Collaboration
Interdepartmental collaboration between programming/activities, dining/culinary, sales, and marketing to ensure experiences are designed to be elevated and engaging and marketing and sales know-how to how to share via media and with prospective residents and families.
4. Turn Your Gaze Inward
Your greatest asset lives and works in your community….the residents and staff! Both are filled with passions and skills that can enhance community engagement. We cannot plan a life “for” someone, instead, it has to be “with.”
5. Stop Buying “Stuff”
Budget-friendly program opportunities….movement, breathing, going outdoors, gratitude, and building connections and what about being green and environmentally friendly.
6. Learning About the Growth Factor
Activities versus Programs….know the difference.
7. Boardroom Confidence
Take a seat at the table….how to make a business case for your needs.
8. Engagement Begins with Discovery
Resident discovery….what do you want to learn? Where does this information “live”? Who can access this information? How often do you update it?
9. Don’t Take it Personal – Level Up
Leaving the past in the past! How to move forward thoughtfully and professionally.
10. Self-Advocacy & Professional Development
Find a mentor! LinkedIn, fellow senior living colleagues, etc. Find someone who teaches you to have the confidence and demeanor to advocate for yourself with facts and data, not losing your composure and becoming emotional.
I posted an article on LinkedIn sharing perspectives on how engagement professionals can maintain the traction gained of respect and enhanced quality during the pandemic. Check it out for a free download of/ a Tips for Elevating Engagement Professionals handout as well as a full recording of a recent conversation with Sara Kyle and Kelly Stranburg with LE3Solutions and myself! You're sure to find encouragement, best practices, and next steps as you continue the good work in your community. AGE-u-cate and LE3Solutions are here to support you!
I consider myself fortunate that so far, nobody in family has lived with dementia. Many people working in aging services are there after having personal experience caring for a loved one. Strangely enough, my first experience interacting with someone living with dementia was in college, during an internship in a CCRC my senior year.
Sometimes we all need to be reminded of how our little part in helping a world in need can change our thinking.
Matt Reiners is the Co-Founder and Vice President of Eversound, a hearing solution company dedicated to improving the quality of life for elders. Recently, he had a conversation with our own Laura Ellen Christian about the future of training and education for the senior living industry.
In the world of options for quality life engagement programming, seeking activities that decrease staff direction serves many purposes:
That latest research from AARP and the National Alliance for Caregiving is alarming. The US had 43.5 million unpaid caregivers in 2015. By 2020, that number soared to 53 million. Nearly one in five or 19% provide unpaid care to an adult with health or functional needs.
In my last blog post, I shared a recent poll we had conducted that asked what type of training is most effective for aging service providers. Experiential training was the clear leader, followed by peer-to-peer mentoring. Online learning came in last. We need to change our thinking about online learning!
The team here at AGE-u-cate recently ran a poll on this very question. Of the following options, including online learning, experiential training, peer-to-peer mentoring, and "other". The clear winner was experiential training, coming in at 77%, followed by peer-to-peer mentoring at 23%.
We are talking a lot about empathy lately. I see many posts, blogs and articles on the subject because so many feel that it is severely lacking in this current time. Social psychologists are having a field day dissecting what has gone so wrong, and why.
AGE-u-cate's CEO Pam Brandon sent each team member a jar containing one inspirational quote per week for 52 weeks. Every Monday, we unroll our scroll and read the message to the team. You may have seen Laura Ellen Christian on LinkedIn every Monday sharing a video reflection on her inspirational quote.
It is time to get serious about changing the onboarding process for new hires, and there is no time to lose. Maggie Keen, Vice President of Corporate Development at MissionCare Collective delivered this impactful message for AGE-u-cate's February Virtual Road Trip entitled, "Building Culture: Rethinking recruitment, onboarding, and retention to drive better care and a better workplace."
Describing empathy as a lubricant creates visuals in my head like the annoying squeaky door hinge that finally gets some W-D40. A lubricant softens rough edges, makes things work better, and a little bit goes a long way. I think the same is true when we approach situations that we encounter in work and life from a place of empathy.
I have experienced moments of confusion, like being on a business trip and waking up in an unfamiliar place and needing a moment to orient myself. One time (or possibly more than once), I forgot where I parked my car at a large shopping mall. With so many entrances to choose from, I could not remember which one I walked through to enter the mall. Just a few weeks ago, I went through half of a day believing it was Thursday, and it was Wednesday- an entire HALF DAY!
Caregivers are one of the most unheard and underserved groups in our society. Growing at exponential rates, they struggle with isolation, loneliness, and adverse health consequences at a much higher rate than the general population.
For as many challenges as we've faced in the past few years, I see a movement stirring around the kindness, empathy, and understanding that I see turning the tides of many organizations' value sets.
I use the term "inside-out" a lot. Maybe too much, but it goes back to my early parenting days when I'd tell my kids that beauty starts on the inside. Then it moved to creativity, integrity, happiness, and so on. I think they got the picture.
When you read this, I have no doubt a few hands went up. Who working in Senior Care these days does not need help?
I'm not going to talk about the gravity of staffing shortages. That would be nothing new and not the point of this article. So instead, I hope that our readers pick up a few pointers that help you solve a problem.
From a leader/employee perspective, let's look at the value of the question "Do you need help?"
Last year one of our team members here at AGE-u-cate was caring for her father, who had an unexpected and sudden onset of serious health events. In addition to helping her elementary-age students while schools went virtual, the day-to-day challenges of caring for her father became overwhelming. She is a dedicated team member, passionate about our mission, and was now living it herself. She was exhausted but continued to deliver work with her available time.
There are many definitions of threshold that are worth discussing before we jump to the meat of how it relates to dementia training.
Navigating the Future is the theme for this year's National Activities Professional Week. What a great time to talk about the vital role that Activity Directors and Life Engagement Directors play in improving the quality of life for residents, enhancing family and staff satisfaction, and boosting the bottom line.
Empathy is being able to put yourself in someone else's shoes for a while so you can imagine what they are going through, leading to a deeper understanding of their feelings and behaviors.
Coping with the loss of a family member may be one of the most complex challenges we face. When we lose a spouse, our grief can be particularly intense, and moving on after a long and happy marriage takes time. Loved ones can be catalysts in helping those grieving to find joy and happiness again.
Patricia (Dee) Hutchinson is AGE-u-cate Training Institute's Fulfillment Center Manager. I want to share her story about her father-in-law, Donald, and his journey from loss and grief to finding purpose and meaning after the loss of his wife. Here's their story:
In previous blogs, I've discussed the proven benefits of Dementia Live® as a powerful and effective experiential foundational training experience.
To elevate dementia care practices, care partners must first understand dementia and how persons with dementia feel challenged with cognitive and sensory changes. Dementia Live® simulates cognitive and sensory impairment, giving participants first-hand experience living with dementia.
In dementia simulation programming, there's a lot to say about what makes Dementia Live stand out. Since its launch in 2015, the team here at AGE-u-cate® has spent more time listening to our client partner's needs than talking. The result?
A program that is indeed what our tag line says: Proven. Powerful. Effective. Tag lines can get wordy, so we'll discuss another significant benefit:
Dementia Live is incredibly flexible.
As empathy and skill-building training, Dementia Live brings together a transformational experience, care partners empowerment session, and practical tools to professionals and families across the aging care spectrum. The team at AGE-u-cate believes that EVERYONE needs to better understand dementia.
We are at the crossroads of unprecedented growth in our aging population, which will continue to affect every aspect of our society. Therefore, aging and dementia education is necessary for breaking the cycle of ageism and exclusion for persons living with cognitive changes. Our provider partners are key catalysts to offer this critical dementia awareness experience and education to the world.
Dementia Live coaches receive organized, easy to deliver training which allows them (provider organizations) to take the Dementia Live program beyond the walls of their own organization. We provide the tools and resources to adapt to ever-changing circumstances, such as a virtual version of the Experience developed in response to the COVID pandemic. This Virtual Dementia Live Experience allowed providers to continue to use the program as an outreach education tool while social distancing restrictions were in place. Here's what The Alzheimer and Parkinson Association of IRC had to say about AGE-u-cate's pivot to a Virtual Experience during Covid.
Dementia training is serious business. As we grapple with the exponential growth of people living with dementia, aging services providers are looking closely at programs that will improve outcomes for their residents, clients, staff, families and support business goals.
The AGE-u-cate team has been hard at work since the launch of Dementia Live® in 2015 to deliver a program that meets the complex needs across the spectrum of aging services to serve better those living with dementia and their care partners.
Proven.
Integrated by over 800 organizations and agencies in the United States, Canada, and Australia, Dementia Live® has a robust value in the aging services industry. This evidence-informed training program is guided by science-based experiential learning and microlearning strategies. Placing the learner directly in touch with the realities of living with dementia, they gain more profound levels of understanding and knowledge and receive practical skill-building tools and techniques that effectively improve care and quality of life for care partners.
Powerful.
Learning by doing is not a new concept. Educators have long pointed to the exponentially powerful effects of this education model. American psychologist, professor and educational theorist David Kolb published his learning styles model in 1984, from which he developed his learning style inventory.
The 2021 winner of the Nobel Prize in Medicine has been awarded to Ardem Patapoutian. PhD, a neuroscientist at Scripps Research in La Jolla, CA for discovering cell receptors that enable people to sense heat, cold, pain, touch and sound. The award¹ is shared with David Julius, a physiologist at the University of California San Francisco.
I found advice from Forbes, dated December 31, 2018, that I believe is spot on about setting 2022 new year's resolutions, and it goes like this, "This year, set goals instead of resolutions."
The stakes are different as the holidays arrive, especially in year #2 of the pandemic. While carols are playing, there are emotional minefields at every bend, especially for caregivers. This holiday season is a weary one for healthcare workers in the hospital setting to those serving in long-term care services.
For many, the holidays are a time of celebration and gatherings, but let us not forget those working tirelessly amid unprecedented staffing shortages and the sudden surge in COVID cases.
Research consistently reports that caregivers report much higher stress levels than the average person; it is a certainty that CNAs, PSWs, nurses, and other caregiving staff feel the additional strain of the holidays. Their professional burdens often transfer to their personal lives, leaving a domino effect of anxiety to entire families.
What can we do to honor and support caregivers this holiday (and always)?
'Tis the Season for connecting with family and friends, and for some will be the first in-person visit in a very long time. For others, it might be long-distance communications, and now thanks to technology, there are many ways in which we can be more engaged than ever. I want to talk about the importance of reminiscing, especially with persons living with dementia.
For years, aging service providers have focused on the resident or patient experience. But, with staffing shortages at dangerous levels, leaders are quickly shifting their priorities. After all, the resident or patient experience is only as good as those providing care.
The Validation method was developed by Naomi Feil in the 1970s and formalized into a method that she first published in 1982. Her pioneer work set off a massive change in elder care. I call Naomi, the godmother of ‘person-centered’ care.
I don't know about you, but I'm ready for the new year. Of course, I always look forward to dreaming of new adventures, possibilities, and the opportunity to open a new chapter. But, I've got to be perfectly honest. I'm REALLY looking forward to 2022!
I'm guessing that most of you who are reading this, no matter where you fall in the aging services spectrum, would have to agree the last umpteen months have been a doozy!
What I don't want to do is belabor the point. In fact, I'm not even going to bring up anything about what we've been through because that's all we've been talking about for far too long!
Starting all over again is not that bad...because when you restart, you get another chance to make things right.
When we restart, we put things in a new perspective, learning lessons from the past. But, when we look through a different lens, the ideas and creativity that start flowing are incredible! We've had the opportunity at AGE-u-cate to do just that. We decided late last year that we would look beyond the circumstances beyond our control and put our innovative heads together to do things better.
Don't let Fear and Uncertainty Stop You.
Being Stuck is about the most frustrating feeling in the world. Getting UNSTUCK is exciting. It means you are moving forward, even if in baby steps. Taking small steps is often hard for me, but thanks to a great team, they remind me that it's sometimes essential - and I'll be doggone - they are right! When we embarked on our Reveal Aging Micro-learning initiative, we had to talk with our partners, garner feedback, and take the time necessary to do it right.
Failure is Part of the Process.
Failure is NOT the opposite of success. It's a part of Sucess! How many times have you gotten off the ground with a new program or initiative only to hit a brick wall? Probably more times than you can count. As we know, things happen that are out of our control, and sometimes we don't think things through. It's Okay. Start again, and learn from your mistakes.
Stay Focused, and Keep your Eye on the End Game.
If you are in aging services, you have a mission, and it's an important one. What better work to do than that which has a higher calling? Is it easy? No. Can you solve all the challenges that lie ahead of you? Of course not. Can you make a positive difference in the lives of others? You bet, and that's where you need to keep your eye set.
We need to look ahead to all that we can do better in 2022. Right around the corner lies a world of possibilities for all of us to work together and make a difference in the lives of those whom we serve.
Let's Press Restart! Refocus and Get Started because 2022 is right around the corner - thank goodness!
With all due respect Len King, I never knew you were this cool! You see, my high school band director (late 1970s) directs the Arizona Swing Kings Jazz Orchestra, and is still inspiring musicians to perform at the top of their game. He is also the founder of the Chicago Metropolitan Jazz Orchestra, back in the day.
Part of my responsibility as the VP of Grant Initiatives is to track the progress of Compassionate Touch® and Dementia Live® online coach training for the nursing homes that are participating in our Civil Monetary Penalty Grant (CMP) projects. We have amassed an impressive list of nursing home staff in Ohio , Minnesota, North Carolina and Tennessee who have completed online training to become Compassionate Touch® and/or Dementia Live® coaches.
After months of reviewing training reports, this week I noticed something other than the number of new coaches, and that is the number of coaches since 2019 who are still with their facility.
I need to preface by saying that this information has not been confirmed by participating facilities, but each time an email bounces back to me- the name is scratched off my list. In Ohio, 99/124 Compassionate Touch® and 76/106 Dementia Live® coaches appear to be reachable with the same email address used to enroll in coach training, indicating retention of 79% and 71% respectively.
Admittedly, there is likely a margin of error in these numbers, but assuming a -10%, these numbers are impressive, considering the massive turnover that has occurred during the pandemic.
While the recipe for retention is far more involved than just providing staff education, I believe I am justified in believing the human resource investment that these participating facilities made in Compassionate Touch® and Dementia Live® training may have contributed to the retention of these coaches. Many of these coaches are still in touch with me and share their excitement about starting up training again.
National Commission for Quality Long Term Care, 2007
Public Policy and Aging Report, 2017
National Institute of Health, 2021
The above studies reveal that the reasons for voluntary separation include many factors, but lack of quality training and education, feeling ill-prepared, and absence of professional growth were consistent factors.
Compassionate Touch® and Dementia Live® coach training is high quality, relevant and fills knowledge gaps that move the ill-prepared to a place of confidence and competence. These programs are also utilized as career ladder opportunities in many organizations, and that number is growing.
Everyone should take a moment and think of your accomplishments over this past year- I am sure there are many. For me, taking stock that perhaps our work at AGE-u-cate® has helped to in some way to keep employees engaged and retained is very rewarding.
This blog title is credited to a member of the Board of Directors for the National Association of Health Care Assistants (NAHCA). I was enlightened after attending a symposium entitled, "The New CNA Workforce: Frontline Lessons from the Pandemic" given by NAHCA.
Career CNA board members and thought leaders shared their passionate pleas for significant change. It really was quite moving, and frankly, sad. Sad in the sense that they felt compelled to give everyone a piece of their mind about how, for decades, they have been treated by their superiors and organizational leadership.
A stern warning was delivered, "We will not tolerate these conditions much longer", and seriously, who can blame them.
Lori Porter, Co-founder and CEO of NAHCA shared this startling reality- there are 425,000 fewer nursing home workers today than before the pandemic, and if serious change doesn't ensue immediately, this number will grow exponentially.
Why must change be driven through threats? The answer is because nothing else seems to have worked.
Don't think that it is only about the pay. Yes, nursing assistants need, and deserve to make much more than they do, but what they also need is to be a valued and respected member of the team.
I reeled hearing one CNA board member describe how in the middle of rendering care to one resident, a nurse knocked on the door to say that there are two more call lights going off and could she please hurry up. Seriously? This unacceptable and disrespectful to the nursing assistant, and the care receiver.
Change in this realm will include everything from a long-term national strategy to reform the long term care system to immediate, organization-specific actions. But, one CNA board member laid it out, "We need to get back to the basics, and re-set." My ears perked up, because this exact phrase has been our mantra at AGE-u-cate for months.
We simply must take care of the caregivers, so that they can give their best to their care receivers. The basics include respect, dignity, and appreciation for all. When we get back to the basics, we can begin to rebuild a healthy organizational culture.
It will be up to leaders to work in tandem with all employees create the path to a healthy culture. Listen to what your staff have to say- you may be surprised how much thought they are giving to the issues at hand, because they deeply care. So many ideas were shared, but one that stood out to me is the desire for more education and training that grows skills and leads to advancement. The lack of a career ladder for CNAs is a detriment to the future of this workforce.
I heard so many great ideas from these passionate CNA thought-leaders and I crave more conversation. We have to give them what they need, so I am grateful that NAHCA Board Chair Sherry Perry has agreed to meet with me next week to continue the conversation. Sherry's profile on the NAHCA website includes this statement:
"Being a member of NAHCA has inspired me to be the best CNA I can be. It’s helped me to realize that my voice can make a difference not only for other CNAs but most importantly the elders we care for.”
Thank you Sherry and to your colleagues for speaking your voice- I hope you know that you were heard by many, and I am honored to have been included.
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Although my personal story of caregiving goes back decades, the message has not changed. My sweet mother, Jeanette, lived with Parkinson's Disease for many years. Our journey together as care partners included the highs of our incredible mother-daughter relationship growing even closer and the lows of experiencing the emotional roller-coaster of managing a disease that is ever-changing and often mysterious.
At 85, Jeanette's health had declined significantly due to the progression of her PD and complications from a broken hip. In addition, my sister was taking care of our mom in her home following a rehab stay, and the stress of 24/7 caregiving responsibilities took a toll on her physical and emotional health. It was time for a change, and a decision needed to be made relatively quickly.
Visiting one care community after another, I soon became embattled with my own emotions as I toured beautifully decorated buildings led by cheery marketing professionals. All the while, I was an emotional train wreck. What was truly important? I had some real soul searching to do.
A friend suggested I visit a residential care community that her dad had been in, so I arranged for a meeting with the owners, one of who was a registered nurse. The home was not in the most convenient area to my home, but was adequate for my sister and me to visit with a drive for both of us. The neighborhood was eclectic but safe. As I drove to the house, my thoughts were on a single track.
Entering the house, one of the care team members greeted me with a warm welcome and hug. The place was lively and bright, though far from fancy. Sitting areas in the large living room included residents, care partners, and family members.
As I made my way to another sitting room to meet with the owner, I noted the care team busy making lunch and chatting about the new recipe for the day. They stopped to say hello and asked if I'd like to stay. How could I pass up a yummy-looking Mexican dish?
As I sat down to talk, I could feel my emotions bubbling, and sure enough, tears started streaming. My decision of where my precious mama would live out her days played heavy on my heart. What did I want for her, for me, and the rest of my family? After all, we were all in this together.
All of the "things" that I thought were important started racing through my head. Within a short driving distance? Not really. Amenities? Somewhat limited. And this sounds so silly now, but at the time, I thought to myself, "this is just not mom's decorating style."
As I pulled myself from the depths of my crying episode, I felt incredible compassion and understanding embracing me. As I explained mom's health needs and history, it became clear what I was seeking.
Beyond the basics of cleanliness, safety, nursing care, I wanted my mom to be loved when I wasn't there. That sounds like a big ask, right?
AGE-u-cate was honored to welcome Stacy Porter from The Beryl Institute as guest presenter on our October Virtual Road Trip Webinar topic, "Becoming the Best Place to Be."
The Beryl Institute is a global community of healthcare professionals and experience champions committed to transforming the human experience in healthcare. Many of the institute professionals are Certified Patient Experience Professionals (CPXP) who are turning more attention to the Aging Services industry.
Stacy's presentation was based on their recently published white paper entitled, "Becoming the Best Place to Be: Elevating the Experience in Senior Living."The Beryl Institute experience framework consists of eight components, with Culture & Leadership at the top. Stacy shared that the foundation of any successful experience effort is set on the purpose, values and how the organization is lead. Stacy offered steps organizations can take to begin transformation:
Another component of the experience framework is Environment and Hospitality. The elders that participated in interviews indicated that they really look for a culture of home in their communities. Warm and fuzzy words come to mind when most people think of the word home: belonging, love, comfort, safety, relationships. acceptance.
Inclusion is an essential to make any of this work. All stakeholders, most importantly those that live in the community, must be invited to become involved. Stacy concluded with this:
A fundamental shift in thinking and direction is needed. There is no normal to which to return.
AGE-u-cate is grateful for Stacy's time and valuable information shared on our Virtual Road Trip, and we look forward to continued collaboration.
Hardly a day goes by that I don't hear or read something about Caregiver Burnout. The subject seems to revolve around these themes:
We are well beyond the stage of prevention, and it is probably something that should have been addressed very early on in the pandemic. There is no value in would have or should have discussions. Perhaps the best we can and should do right now is work toward some level of burnout recovery for the dedicated workers who have hung in there.
There are good things that some organizations are doing right now, including but not limited to additional days off with pay, thank you lunches and flexible scheduling. But, as we crawl our way to a place that feels more like recovery verses trauma, let's give some thought to more systemic and continuous ways to keep caregiver burnout in check.
An effective strategy depends on understanding all of the reasons for caregiver burnout, and there are many. Coping strategies, or lack thereof, is just one factor. In other words, staff who are equipped with coping strategies do better- makes sense, right?
The first step is for caregivers to know what burnout out looks and feels like. Acute awareness before it spirals out of control is critical. Next comes healthy and effective coping strategies. Caregivers who are not educated on how to recognize and employ strategies to alleviate burnout are at high risk for many problems.
In an effort to offer Aging Services organizations an immediate intervention to address caregiver burnout, we created a one-hour device enabled course entitled, "Coping with Caregiver Burnout." AGE-u-cate is offering this time limited complimentary course audit here:
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This is something that should not have come as a surprise to me, but it did. Persons living with dementia, even in the mid to later stages, can call upon their long term memory and actually read! Not only can they read, they can enjoy themselves!
It turns out that I was partially correct, in that people with dementia are unable to read text dense, visually overwhelming materials. I think back to my early days working in the nursing home when we would place a National Geographic magazine or USA Today Newspaper in front a person with dementia thinking that would keep them busy and engaged. Sheesh.
Created by Susan Ostrowski, MA, MS, CCC-SLP, Reading2Connect® is a life enrichment program centered on books adapted for adults living with dementia. The R2C® strengths-based program enables a higher level of wellbeing through reading independently, expressing individuality, recalling pasts, sharing humor, and emotionally connecting with peers, family, and caregivers.
This works because reading is a skill that is generally preserved and intact in the procedural memory of an elderly person. Like brushing teeth or using a spoon, the ability to read is automatic and often remains to some degree functional even in the later stages of dementia.
The Barrington Area Council on Aging (BACOA), located in Barrington Illinois, recently integrated Reading2Connect® with the members of their Adult Day Program. This testimonial put a smile on all of our faces:
"Our Adult Day Program members look forward to our Reading2Connect sessions. The highly readable print with the accompanying photos allows everyone to connect in their own way. The wide variety of themes help evoke conversation. I observe intimate connections, social engagement and expressive language within the group members".
Pam Pellizzari, CDP
Memory Programs Manager
BACOA
Reading2Connect® is a perfect program for Area Agencies on Aging searching for innovative ways to reach isolated elders living with dementia. Memory and Nursing Care Communities and Adult Day Programs can make life enrichment programming stand out with Reading2Connect®!
In an effort to learn about the educational priorities for Aging Services providers, AGE-u-cate® conducted a survey and asked respondents to identify topics most important for staff. Fifty percent (50%) of respondents represented the nursing home industry, and the remainder was a combination of other sectors and professionals that serve the industry. Sixteen topics were offered, and 63% of the respondents selected "Preventing Caregiver Burnout" as most important.
One survey respondent shared,
The American Medical Association urges leaders to "strive to maintain critical infrastructure and have support in place for staff during this time, knowing that this may require modifications to existing strategies, tactics and roles." An imperative strategy is to educate staff on the signs of chronic stress and how to intentionally employ coping strategies.
Look no further for an excellent and affordable resource to educate your staff about caregiver burnout. Reach out to Laura Ellen via the link below to receive complimentary access to AGE-u-cate's REVEAL Aging one-hour device-enabled course "Preventing Caregiver Burnout."
Your feedback on the need for additional topics is invaluable as AGE-u-cate continues to plan for future courses. Follow this QR code to participate in our 4 question survey. Thank you!
AGE-u-cate® appreciates learning about organizations out there improving the lives of elders. I had the pleasure to meet Jared Bloomfield, the National Field Manager with Wish of a Lifetime at AARP. We connected after attending the Pioneer Network Symposium "Envisioning the Future Finding Meaning and Purpose" held on September 22.
Wish of Lifetime, a charitable affiliate of the American Association for Retired Persons (AARP), sponsored one of the sessions at the symposium called, " A New Look at Community Commitment: It’s All About Making Connections”. I was captivated and inspired by the presenters in this session: Mary Knapp, Annie Dunlap, and Kelly Klund who all shared the ways that their respective organizations are creating meaningful engagement opportunities for the elders they serve.
Wish of a Lifetime's mission is to shift the way society views and values our oldest generations by fulfilling seniors’ dreams and sharing their stories to inspire those of all ages. They are working hard to connect elders with amazing opportunities to fulfill a dream.
"Wish of a Lifetime" has a Wish Team that reviews nominations submitted via their website. Jared shared that they have the capacity to accept more nominations! It seems that the pandemic has hijacked time that aging services staff might otherwise spend submitting an application on behalf of an elder, but Jared assured me that submitting an application is easy and worth it! A link to their website and nomination portal is below.
It has been said many times that the older generation has suffered the most from the effects of the pandemic because of the extended isolation and loneliness they have endured, so I jumped when I heard about this opportunity to share the call for nominations. To inspire motivation- read this story: Joy Takes Art Lessons.
Everything has changed for Joy because of one wish. Please visit Wish of a Lifetime Nomination to learn how you can submit an application today. Learn more about Wish of a Lifetime here.
AGE-u-cate will be keeping an eye on the good work of "Wish of a Lifetime", because we share a mission to improve the quality of life for elders through our engaging life enrichment programs Compassionate Touch, Reading2Connect, Ageless Grace, and Flashback.
Marketing Team - are you ready for 2022? I suspect you are either shaking your head in agreement or feeling stuck in planning what to do next.
Senior living providers have had a plateful of challenges to address, and one that ranks high on the priority list is to rebuild census.
Let’s talk about how to differentiate yourself from the crowd, build quality relationships that result in move-ins, and create an ongoing stream of referrals.
I started in the aging and caregiver space over 27 years ago as a family caregiver. Almost three decades later what I needed most then is exactly the same as what study after study supports is desperately needed now - education!
Be Your Community Resource
I talked in my last blog about the importance of community collaboration - that is, a care community's collaboration within their geographic region. For example, working with a local Dementia-Friendly Initiative, Alzheimer's Association or Parkinson's Foundation, or others working hard to build widespread awareness of critical aging issues. This helps to expand community relationships, build awareness and develop connections with referrals, and all the while contributing to the greater good.
The need today for effective dementia education is through the roof!
Marketing team - add to your toolbox a "Wow" experience to help people better understand life with dementia.
2022 will be a year for:
Become a Dementia® Live Coach
AGE-u-cate®️ Training Institute's highly acclaimed Dementia Live®️ Simulation Experience is the game-changer. It's what people talk about a year after they've gone through the experience. It offers the care community representative the opportunity to speak one-on-one with participants, build a meaningful relationship, and in the process, provide one of the most powerful dementia education experiences available today.
As much as your staff needs Dementia Live®, your community does as well. This program offers the benefits of flexibility, practical tools, and resources to allow senior care providers to use as staff training AND community outreach education. And if in-person is not an option, the program includes an online option!
"Dementia Live is hands-down, our most valuable census building tool. Beyond its incredible educational value, it's our #1 marketing investment." ED, Texas.
AGE-u-cate is on a global mission to ignite change! Want to join us?
If you want to learn more about having Dementia Live® in your sales toolbox, contact us today!
Let's be honest. 2021 felt like we had our foot on the gas AND brake at the same time. Make plans, cancel plans, make plans, reschedule plans. Make PLANS? Uh, let's wait and see. Sound familiar?
This is GOOD NEWS!
What feels abundant right now is trauma, stress, and burnout. Heading up an Aging Services organization during this time has been no easy task. At AGE-u-cate, we have tried to offer nuggets of support and encouragement to help infuse some hope in what feels like a long nightmare.
With so much out of our control these days, there is something we can control, and that is how we relate to each other. Kindness should always be a part of a leadership philosophy, but when we feel pushed to the edge, kindness might take a backseat.
Kindness can be defined as the quality of being friendly, generous and considerate. Seems like a fairly simple and straightforward way to interact with others. In fact, ABC news reported last year on research that informs us that being kind pays off. Being kind makes us feel better and healthier, and is wired into our survival. Oxford anthropologist Oliver Curry believes that we are kind because under the right circumstances we all benefit from kindness.
When you explore why we humans like to read, you find statements such as,
Aging Services providers are scrambling to find new and dynamic ways to replenish their depleted workforce. Creative messaging and incentives are being deployed to entice prospects, but these efforts are for naught if turnover continues at the pace this industry has experienced. A laser focus on employee retention is imperative.
AGE-u-cate thrives on relationships, whether that be with aging services providers or industry partners.
I attended the most extraordinary virtual symposium with my AGE-u-cate colleague, Laura Ellen Christian. Hosted by Penny Cook and her team at The Pioneer Network, the day was entitled "Envisioning the Future: Finding Meaning & Purpose." Both of our heads were spinning all day as we furiously chatted via Teams our take-a-ways and ideas.
One of my favorite statements in the movie, "The Fellowship of the Ring" is, "What is this new devilry?" Such is the question asked by many Aging Services leaders as they face the next slam with the pandemic- staff vaccination. Some employees vaccinated willingly, some begrudgingly, and others not at all.
How can providers encourage vaccination compliance and ultimately retain their workforce?
Dying and death is often viewed as a scary and sad turn of events. And while losing someone we love is sad, the truth is that we're all going to die at some point. There, I said it! A recent post I ran across on LinkedIn shared the concept of maraṇasati, meaning mindfulness of death. It's a Buddhist meditation practice that often includes incorporating various visualization and contemplation techniques focused on the nature of death. From what I could gather, the intent is to bring more awareness to your present moment and encourage you to live life as if there is no tomorrow. No regrets! And if you practice Christianity, you believe that with death also comes eternal life. There is comfort in knowing the rest of your days will be spent with Jesus and others who have gone before you. For my family, we take comfort in the latter. And that is something that my grandmama Mildred instilled in all of us. And I'm lucky that those roots continue to run deep through my mama. If you're reading this, mama, grandmama would be so proud of how you continue to guide our family in strong faith!
I'm also intrigued by maranasati and look forward to researching that more. How do you cope and find comfort in times of loss? There is no right way, and sharing may help others! Be sure to leave a comment. And, if you'd like more information on death and dying, check out a previous blog or reach out to me.
For the article I saw on LinkedIn about maranasati, click here. And if you need a "lift" today, here's the song, On Eagle's Wings!
To view the previous post introducing my grandmother and our family's journey caring for her, check it out here.
I truly enjoy hearing stories about how people have made their way into the world of eldercare. Many were inspired by experiences with older adults when they were young, and such is the case for me.
I mentioned my grandmother briefly in my last post and I would love to share more about her! Her name was Mildred and this year she would have celebrated her 101st year around the sun. She was was the pillar of our family and barrel of fun! I can see her infectious smile now, dancing in the kitchen singing "If I'd known you were coming, I would've baked you a cake"! Most of my memories of grandmama Mildred involve her journey living with dementia. She taught our family so much in the 8+ years she lived with dementia. Her sense of humor never ceased and was a critical piece in allowing grace to shine bright through it all. And boy did we need grace - we didn't always get it right. That's life.
Many Aging Services leaders are working tirelessly to maintain and even rebuild a positive culture within their care communities. The question is whether this is possible to do during a lingering pandemic? A McKnight's Long-Term Care News article opined that it is possible, in spite of a pandemic.
I just returned from spending two days in Columbus, OH at the Ohio Healthcare Association Conference with my AGE-u-cate colleague V'Ann Guiffre. I now realize how much I have missed interacting in person with "my people." There is just something about people that work in Aging Services! I won't do justice in explaining what I mean, but you know, there is just something there.
In a recent article published by McKnight's Senior Living, a survey of caregivers in Texas showed that while pay was an important factor in staying in the senior services field, it wasn't the only driver of satisfaction. This is contrary to what most managers believe. The study listed feeling respected, job flexibility and pride in the physical workplace as important to staff connected to their work. So, how can the industry make small, but impactful shifts to improving retention among caregivers and other roles? Here are a few simple ideas to get your wheels turning:
The delta COVID-19 variant seems to be ushering in an understandable second round of pandemic-induced anxiety. Aging Services providers, and those that serve them, are still traumatized from the first go-around. Enough time has not passed to allow for a psychological re-set to cope with a do-over. So, what are we to do?
There will be a wonderful gathering of Aging Services professionals on Saturday, August 21 in Chicago to celebrate the life of our friend, colleague, and passionate advocate for dementia capable care, William Keane. Bill is one of the many mentors who shaped my philosophies and personal mission in eldercare, and I am honored to be one who will share how Bill continued to teach me, even in the later stages of dementia. In Bill's honor, I would like to share a snippet, because it is a reminder to all of us that wisdom still lives inside a person with dementia.
Direct care workers are home health aides, personal care attendants, certified nursing assistants or caregivers. They provide a wide range of necessary services, include helping with activities of daily living, such as bathing, dressing and eating to helping cleaning homes, prepare meals, managing medication regimens, companionship and much more. Direct care workers play a critical role in aging services and provide the bulk of long-term care. Despite their importance, they often provide care under stressful working conditions, do not have opportunities for career advancement and are among the lowest paid workers.
It's frightening to care for someone you don't understand. People living with dementia (PLWD) are themselves often filled with fear and anxiety and express themselves in ways that are difficult for others to comprehend. For a family member or professional who is helping persons who are themselves trying to cope with the cognitive changes going on in their brains, it is a domino effect that carries over to care partners. Fear, anxiety, guilt, and feeling very frustrated in not having the tools to better communicate and respond to stress reactions leave caregivers feeling helpless.
It's no surprise that the long term care sector has experienced declining occupancy and census due to COVID-19. The best marketing and sales efforts couldn't compete with a worldwide pandemic. But the tide is turning and if we've learned anything during this time -is that creativity is king, education is powerful and experiences change how people think, feel and act (because we've been missing these!). Dementia education and awareness is critically needed in our communities. Let's talk about how we can bridge dementia staff training with meeting marketing and sales goals by providing a solution to the pent-up demand for impactful dementia education from our local communities.
