Far too often I talk to family caregivers who are concerned about their loved one's cognitive decline.  It is not uncommon to hear such explanations go something like this:

We have a family caregiving tsunami whose tidal waves are affecting every corner of our society.  I venture to say that most communities are not prepared for the domino effects of a fast-aging population let along to provide support to their families that are scrambling to stay above water - emotionally, physically and financially.

Research confirms that by the age of 40, almost 100% of persons with Down syndrome who die have changes in the brain associated with Alzheimer's disease (AD).  Understanding this link and the challenges of a diagnosis of AD in persons with Down syndrome is important for families and healthcare professionals.

Every fall, teachers ask, “what did you do on your summer vacation?” Summer vacations are a rich tradition for many people. But as our loved one ages, memories of family trips — and the hopes of them continuing — seem to fade. As July turns the page into August, summer’s end appears too soon on the horizon, especially if what used to be your favorite family vacation is no longer do-able. Or is it? How do you vacation with — or do you need a respite from — your loved one with dementia?

As a long time family caregiver and professional in this field, I can tell you that the myriad of emotions that caregivers face on a daily basis is complex and ever-changing.  That said, grief, guilt, and anxiety are certainly at the top of the list.   How can we, as professionals in this field, better understand family needs and partner alongside them on this difficult journey?

Caring for people with dementia requires specialized communication skills training.  Unfortunately, healthcare professionals and family caregivers often receive little training to enable them to meet the communicative needs of people with dementia.