The rising incidence of dementia and its toll on families is one piece of a significant domino effect on public health. As a caregiver for both my parents affected by dementia, I can say firsthand that there are no words to describe the emotional and physical price of this journey. I want to explore the broader crisis we face: the cost to our communities, public health, health systems, and the stakeholders who are all invested in this space.

First, let's face the reality: the looming aging tsunami, as it has been referred to for decades, is here. It is no longer a futuristic term. With this in mind, planning is accelerating into action at the federal, state, and local levels.

 

 

 

As Alzheimer's Disease and related dementias continue to rise at exponential rates, there is a pressing need for innovative solutions to address this growing epidemic. The concept of dementia capable systems has emerged as a vital initiative at the federal, state, and community levels to create a supportive environment for individuals living with dementia. Let's delve into the definitions of key terms such as dementia capable, dementia capable systems, dementia friendly communities, and dementia capable care, shedding light on the multifaceted approach required to combat this challenging issue.

Dementia Capable:

Dementia capable, as defined in the U.S. national dementia plan, encompasses activities and enjoyments that support the personhood of individuals living with dementia. It also emphasizes empowering care partners with knowledge, skills, and competency to enhance the quality of life for those affected. This broad scope recognizes the importance of addressing both the needs of individuals with dementia and those providing care.

The alarming statistics surrounding Alzheimer's and dementia in communities of color cannot be ignored. Black Americans are twice as likely as older Whites to have Alzheimer's or another dementia, and Latinos are 1.5 times as likely, according to the Alzheimer's Association. While higher rates of cardiovascular disease may play a role, some studies suggest that these differences disappear after accounting for overall health and socioeconomic status. Regardless of the cause, the prevalence of dementia in Black and Brown communities is a public health crisis that demands immediate attention.

 

 

 

In the hustle of healthcare advancements, the essence of caregiving often gets overshadowed. Nowhere is this truer than in dementia care, where the personal and emotional aspects of caregiving are frequently sidelined by clinical approaches. Let's delve into why returning to the human side of dementia care is not just essential but transformative.

 

Sympathy and empathy are two terms often used interchangeably, but they have distinct meanings and implications in the realm of human emotions and relationships. These differences are not merely linguistic; they carry significant weight when it comes to understanding and responding to the emotions of others.  Let's delve into the disparities between sympathy and empathy,  and why it is so important to differentiate these two approaches in dementia care.